Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@avmcbellar

@jakedduck1 I don’t like many wicked gadgets either. I have done away with many and kept the ones I use the most that makes cooking easier on me. A Bullet is quick and easy to whip up nutritious smoothies for yourself. I agree certain foods should be grouped together for better nutrient absorption. Vitamin C does help you to absorb iron. Milk made a huge impact with your iron levels. I was never a big fan of dairy milk or cheese. As a kid I drank or ate dairy foods to please my parents. Just be careful with the carb count in foods. Don’t want you to become a diabetic. After all cookies will not be the same without real sugar and wheat flour for you to enjoy. Toni

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After I posted my enthusiasm about using a Bullet to make Smoothies with raw vegetables and fruits, my medical team advised me against it for now, due to my ongoing investigation into Crohns/ulcerative colitis and inflammation alerts on my lab tests.
Duh. Don't know why that never occurred to me, since I can't tolerate raw food at all right now. Duh again!
Lol. Oh well, under all this manure, there must be a PONY somewhere!

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@artist01

After I posted my enthusiasm about using a Bullet to make Smoothies with raw vegetables and fruits, my medical team advised me against it for now, due to my ongoing investigation into Crohns/ulcerative colitis and inflammation alerts on my lab tests.
Duh. Don't know why that never occurred to me, since I can't tolerate raw food at all right now. Duh again!
Lol. Oh well, under all this manure, there must be a PONY somewhere!

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I love that saying! Sorry to hear you haven't found the pony yet-keep digging!

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@jakedduck1

@johnbishop
I read that when your pain symptoms decrease or go away as they did in my case and was replaced by numbness that the Neurophy is getting worse and more nerve fibers die. Do you know if that is true?
Did you have all the various pain symptoms at one time?
Take care,
Jake

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I am learning how this site works, so I don't know if that was a question to everyone or just another person. Irregardless, My pain has become habitual. It shows up in the evening and gives me wake up calls all night. I take most the medicine at night so I don't usually wake for more than a minute but there it is. I've had it since 2007 and the daytime pain is much less. I hope yours takes the disappearing route. I have increasing numbness and I was told it will probably continue like that. Probably is the operative word there isn't it? Well, take care

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@bethunger

I love that saying! Sorry to hear you haven't found the pony yet-keep digging!

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Lol. There's always tomorrow!!

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@bethunger

I am learning how this site works, so I don't know if that was a question to everyone or just another person. Irregardless, My pain has become habitual. It shows up in the evening and gives me wake up calls all night. I take most the medicine at night so I don't usually wake for more than a minute but there it is. I've had it since 2007 and the daytime pain is much less. I hope yours takes the disappearing route. I have increasing numbness and I was told it will probably continue like that. Probably is the operative word there isn't it? Well, take care

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@bethunger
My numbness started on the bottom of my feet and has progressed up to my waist. Numbness is worse in my feet and gets better the higher up it goes.
You take care of yourself,
Jake

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@avmcbellar

@jakedduck1 I don’t like many wicked gadgets either. I have done away with many and kept the ones I use the most that makes cooking easier on me. A Bullet is quick and easy to whip up nutritious smoothies for yourself. I agree certain foods should be grouped together for better nutrient absorption. Vitamin C does help you to absorb iron. Milk made a huge impact with your iron levels. I was never a big fan of dairy milk or cheese. As a kid I drank or ate dairy foods to please my parents. Just be careful with the carb count in foods. Don’t want you to become a diabetic. After all cookies will not be the same without real sugar and wheat flour for you to enjoy. Toni

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@avmcbellar
I was concerned about Diabetes, cholesterol & blood pressure so I lost 90 pounds. Weighed 227 and went down to 134 but gained a few pounds. Everyone thought I was sick or we're asking if I had cancer. However, I ate candy or some type of goodies every day. I bought me a 5 pound Hershey chocolate bar to celebrate with when I reached my 90 pound goal. I thought for sure I’d eat it but I still have it. Of course I have more than enough candy cookies pies pastries and junk spread around so no emergency. Someone just sent me a box of fudge today for my birthday and it sure is GOOD!!!
Take care,
Jake

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@jakedduck1 Happy Birthday, Jake! 🎁Enjoy your fudge, and here's to a great year ahead!
You make me jealous, being able to eat all those cookies, candies and google when I'm stuck with a Diabetic diet! 😆

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@artist01
How happy can a birthday be when we get old but you probably don't think I'm old (68)
Sorry to hear you have diabetes. My cousin has diabetes too and whenever he comes to visit I eat what he eats unless he’s having fish then I’ll have chicken.
Take good care of yourself,
Jake

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@jakedduck1

@artist01
How happy can a birthday be when we get old but you probably don't think I'm old (68)
Sorry to hear you have diabetes. My cousin has diabetes too and whenever he comes to visit I eat what he eats unless he’s having fish then I’ll have chicken.
Take good care of yourself,
Jake

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You're not old at 68, you're just a KID! Old is 85, and that's me. But I'm young at heart and that's what counts. 🙂

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@artist01

After I posted my enthusiasm about using a Bullet to make Smoothies with raw vegetables and fruits, my medical team advised me against it for now, due to my ongoing investigation into Crohns/ulcerative colitis and inflammation alerts on my lab tests.
Duh. Don't know why that never occurred to me, since I can't tolerate raw food at all right now. Duh again!
Lol. Oh well, under all this manure, there must be a PONY somewhere!

Jump to this post

No worries, Laurie. You should still be able to make shakes using foods that are low in fiber. How about the fruits and vegetables you can tolerate. Can those be used to make your shakes? Banana and apple should be OK. Veggies should be cooked not raw. Besides the plant based milks there are dairy milks available without lactose for those who are lactose intolerant. Is your GI sensitive to the plant based milks? I prefer using dairy milk without the lactose with my oatmeal to keep the carb count down. You would think the senior centers to have different diets available to please their residents. There are so many needs. How about ready made shakes? I get the diabetic shakes for my mother. I have noticed there are also mixes available for smoothies at the grocery stores. Maybe there is one for you. Some contain vitamins as well. Don’t give up. Look into the possibilities. The mixes can be used with a blender or a bullet. A suggestion would be to check the Amazon website to see what is out there.

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