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Peripheral Neuropathy is life changing: How do you accept it?
It all started with pins and needles in one foot. I left it but finally went to hospital and they said my thyroid was underactive. So I was put on tablets to regulate my thyroid but the pins and needles remained and then went to other foot as well. I went to neurology and had MRI of head and back and later that year had another MRI but apart from stenosis there was no compression. I was very ill back in 2020 with other ailments which remain which is all rather strange. This neuropathy has been life changing. I take maximum dose Pregabalin but it doesn't really help save if I come off it the pain and discomfort could become worse. I have tinnitus and gastric problems digestive issues. I am going to see a specialist to see if I might have autonomic neuropathy which I hope will be ruled out. I just cannot accept what has happened to me.
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@johnbishop
It is interesting that you said your neuropathy started in your toes. For years I had pain in my right big toe-it felt like someone had banged it with a hammer. But now after neuropathic numbness and tingling had taken over my feet and more recently on and off in my shins, the toe no longer has that bruised feeling. I am wondering if the toe was a precursor to my celiac-induced neuropathy. My walking is pretty good save for the shin shave biopsy that apparently has irritated some nerves with the dermatologist's needle. Balance is okay and I do exercises for that almost daily. I am also working on reducing sugar intake since it is often inflammatory. I am really hoping that if the shave biopsy heals which may take quite some time according to my neurologist, I can hopefully drive the neuropathic pains from shins and deal only with the tingling of feet.
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1 ReactionI suffer from severe itching too. I found that applying some capsaicin cream a great help. I use a 0.1% cream. Either use a rubber glove or make sure you wash your hands well. You don’t want to touch your eyes by mistake and burn them.
Thank you. I will try it.
@njed I have PN and have always felt that it is best not to center one's life on any illness or disability, trying to find relief or a cure. As an example, I had a friend who had lung cancer. He actually went to the Philippines, then to Germany because he heard of special treatments and cures there. Nothing changed. Instead of centering his life around finding a cure, he could have enjoyed his wife, his kids, his grandchildren, traveled, whatever.
@japanjim Very sorry to hear about your friend. I could not agree with you more. In 2020 I went to Mayo in MN to get an answer on what was going on with me. Once diagnosed, that was it, I stopped the search on why I have PN and turned my attention to living life to the best I can with PN. So far, so good.
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2 ReactionsTo all you say, Ed (@njed): Ditto, ditto, and ditto again!
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1 ReactionOrson
Seems to me u r very low in vitamin B12. That vitamin (cobalamin) makes blood cells and the insulation around our nerves ,myelin .
B12 is extracted from our animal proteins food by stomach acid.Us elders have less stomach acid so we get less B12. Best thing to do is take the B12 supplement, METHYLCOBALAMIN..
Alcohol stops absorbtion of B12.
Am 83.5 with nil pain in feet or anywhere. I take 2 B12 pills daily. You could too. Go for it. Look up demyelination on internet.