1. < Blood Cancers & Disorders
Profile picture for lanijean11

Does anyone have Anti-MAG with Cryoglobulinemia with IgG MGUS?

Posted by lanijean11 @lanijean11, May 7 11:44pm

After almost 10 years of trying to figure out what's been plaguing me, it's been determined that I have anti-mag and cryoglobulinemia. The difficult part is that my Anti-MAG comes with a IgG monoclonal MGUS, not a IgM, Everything is ramping up.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Profile picture for Patty, Volunteer Mentor
Mentor
Patty, Volunteer Mentor | @pmm | 1 day ago
In reply to @jonyb "@pmm Great paper thanks, similar to one I paid for but better I think. My wife..." + (show)
Profile picture for jonyb @jonyb

@pmm Great paper thanks, similar to one I paid for but better I think. My wife is in a similar situation, but she can't get past Radiculopathy or Neuropathy, even though 3 doctors have said it is PN and 3 podiatrists, Neurology is blaming it on anything else, latest is over sensitivity, Functinal Neurological Type disorder due to radiculopathy, but we have an expert in this at the hospital, so hopefully my wife will see him soon. Two years and getting worse, m-spike is stable but kappa free light chains rising slowly but steadily.

Jump to this post

@jonyb I hope she gets the answers you seek. The frustrating part is that regardless of etiology, there is sadly a poor specialist response for patients seeking relief. Gabapentin is helpful to some. I see or have seen a lot of “ologists” and have yet to find relief.
I think they would be happy to have something useful to offer. Please let us know if you are successful nailing this custard to the wall.

REPLY
Profile picture for lanijean11
lanijean11 | @lanijean11 | 21 hours ago
In reply to @pmm "@jonyb interesting questions. My neurologist notes on his visit summary that my neuropathy is “likely” caused..." + (show)
Profile picture for Patty, Volunteer Mentor @pmm

@jonyb interesting questions. My neurologist notes on his visit summary that my neuropathy is “likely” caused by MGUS, but my Hematologist/oncologist charts, “pt suffers from peripheral neuropathy” but he does not attribute this to MGUS.
I found this interesting.
https://ashpublications.org/hematology/article/2024/1/499/526243/Neurological-manifestations-of-MGUS
I’m hoping others will offer some inside.

Jump to this post

@pmm

REPLY
1 reply
Profile picture for Colleen Young, Connect Director
Moderator
Colleen Young, Connect Director | @colleenyoung | 19 hours ago
In reply to @lanijean11 "@pmm" + (show)

@lanijean11, please note that the personal medical report you attached to your post has been removed for your safety and security according to the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

Connect is a public forum. It is recommended to not post personal information about yourself or others. This includes phone numbers, email and mailing addresses, patient numbers (MRN) and social security numbers.

You can share test results, however, please remove personal identifying informtion first.

REPLY
Please sign in or register to post a reply.