Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

supercala | @supercala | Jun 6 8:18pm

In reply to @supercala "I am Shannon and I have pain joints bad brain issues I don't know about why" + (show)

@supercala I thought that I dream of that the pain and all that would go away was supposed to stated in the here I am about 3 weeks three almost a month after 3 weeks after chemotherapy I was feeling good now all of a sudden all my joints hurt and I noticed I've got Hammerton now and because my elbows and I mean

pack11 | @pack11 | Jun 7 11:02am

Hello, my name is Cara and I have chronic pain stemming from over 10 years of multiple back fusions and more recently from multiple herniated and bone spurs in/on cervical discs. Im hoping by joining this group I can hear from folks going through some of the acute pain issues I contend with daily and learn how they deal with them.

sharshy | @sharshy | Jun 8 7:34am

I have had chronic rls pain since a recocele prolapse repair op 3 years ago also on iron for low ferritin and have not slept through the night ever since. I have been on so many meds I am now of 300mg x3 making it 900 at night. I think they have damaged my prudenal nerve and this is giving me RLS. Im at my wits end if I take 900mg at night I am sedated all the next day. Now so depressed dreading going to bed so now also on 50mg Trazodone. Still in pain with weird dreams and rls. Whats the answer?

rose227 | @rose227 | Jun 8 2:04pm

In reply to @sharshy "I have had chronic rls pain since a recocele prolapse repair op 3 years ago also..." + (show)

@sharshy
I only wish I had an answer for you. I suffered from pelvic pain due to pelvic surgery. I had eight years ago. I understand completely what you’re going through

sharshy | @sharshy | Jun 9 2:15am

In reply to @rose227 "@sharshy I only wish I had an answer for you. I suffered from pelvic pain due..." + (show)

@rose227 Is your pelvic pain better now? What did you take for the pain I have to take Gabapentin and Trazodone just to sleep at night I have restless legs because of the nerve damage.

kayraymat | @kayraymat | Jun 10 8:02am

I have to take 2 tramadol ( 100mg) for my pain so now I am extremely
constipated. How do you manage that??
I took a laxative = 2 tablets ( Walgreens brand) & woke up with Horrible stomach pains
& diaharrea. HELP......... K

heisenberg34 | @heisenberg34 | Jun 10 10:28am

In reply to @kayraymat "I have to take 2 tramadol ( 100mg) for my pain so now I am extremely..." + (show)

@kayraymat I have had the same problem... constipation due to tramadol. I have come to solution: take doses of Clearlax(Amazon version of Miralax). One in the morning and one at night. By the third or fourth day, depending on how I feel, use a glycerin suppository. I always have a BM, usually within 30 minutes. As I stated, this works well for me. Might just help you, too. I wish you well.

gypsyblue | @gypsyblue | Jun 11 9:46am

In reply to @kathrihe "Mary - Pinched nerve in thoractic spine. Pinch caused by fluid filled cyst causing terrible pain..." + (show)

@kathrihe and Mary, I too have spinal cyst. This is new on my MRI. I also have developed hemangiomas at T1-T2. I’ve tried all the nerve meds with no relief. My physician is excellent and goes above and beyond seeking treatments to find me relief. After several years of suffering, the only relief I have gotten is with long acting pain medication, Xtampza as well as fast acting Percocet for breakthrough pain. I know there is so much controversy around opioids, but, when you suffer every single day of your life, you get to a point where you want to try anything to find some pain relief and quality of life. I’m thankful that something gives me some relief. I don’t think I will ever be pain free but some quality of life is better than the alternative.

kathrihe | @kathrihe | Jun 11 11:16am

In reply to @gypsyblue "@kathrihe and Mary, I too have spinal cyst. This is new on my MRI. I also..." + (show)

@gypsyblue So sorry you have this problem! It hurts so bad. Have Dr. appt in July. Thanks for letting me know about your medications as I will ask my doctor about them. I am taking 300mg Gabapentin twice a day. Dr. said take 2 capsules3 times a day. I am not doing that as it makes me foggy and affects my memory. I take lots of Tylenol in between the Gabapentin. I guess removing the cyst is not an option for you as it is for me. I also lie down on back on the floor which gives some relief. Yes. opioids are ok if that is the only thing that helps with the pain.
Thanks for reaching out to me. Stay in touch.

christinadv23 | @christinadv23 | Jun 11 5:03pm

Hello, I’m not sure how to begin being a member of a support team. I have lived 30 years with severe lower back pain,, I had failed back surgery and every procedure in the medical books, Nithing helped. I also have knee arthritis which is causing me to be homebound and I have overall body pain which Drs say is fibromyalgia. I really need support. I have no life, I’m so tired of all this pain.. hard to take shower, get dressed, wash dishes etc. Feels like a nightmare, I wish I cd wake up from. I have more to share. First want to learn how I begin

Please guide me.
Christina Venegas