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Living with Fibromyalgia: Introduce yourself & meet others
Fibromyalgia | Last Active: 1 day ago | Replies (107)Comment receiving replies
Hi there, I am interested in following threads about people like myself who have had debilitating symptoms for months, but who still have not gotten a concrete diagnosis. And tips on how to get a concert diagnosis. I seem to currently be ping-ponging back and forth between a rheumatologist and my PCP. Thank you!
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@meco Have you tried seeing doctors at a research hospital? I find that makes the biggest difference. My pain has always been misdiagnosed because conventional doctors have to fit your symptoms in a box. We are outliers and a lot of the science has been developed the last 25-30 years. I wasn’t properly diagnosed until I got in mayo (at 40). It’s taking a few years and hasn’t been easy but I’m feeling so much better now that I’m properly diagnosed and all my symptoms can now be explained and treated. The struggle is real but we can get through it. Good luck!!