Severe neuropathy in feet and less severe in fingers.

Posted by stargate1965z @stargate1965z, Jan 23, 2025

I suffer from severe neuropathy in my feet and to a lesser degree in my fingers and legs. I’ve had to deal with this for years. I can’t find a doctor who will prescribe me anything other than Tramadol. It takes the nick out of the pain then again sometimes it doesn’t as well. 5 or so years ago I finally had to start wearing my socks and shoes on 24/7 (minus showers of course). That means I sleep in my socks and shoes as well as wearing every day at all times. The pain is too severe to not wear them.

I still have pain while wearing them but it definitely helps when I do. The pain can get so bad that I beg God to take me but I love my wife and dogs so much that I immediately take it back. I can’t find a doctor that will prescribe any pain meds even though my pain is so severe. I have medical records, tests and other evidence of my existing condition. The one neurologist told me after trying a few tests to learn to live with it. I wasn’t happy with that suggestion by any means. It was determined that I have chronic inflammatory demyelinating polyneuropathy CIDP.

Basically I just need information or suggestions as to where I might be able to find a doctor to help me. My own doctor feels bad for me but says he can’t prescribe anything else. I don’t have any issues with drug abuse at all so that’s not a problem. Any thoughts? Thanks I would appreciate it!!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for blowerk1216 @blowerk1216

I have posted this earlier my question is has anyone tried Amla which is an extract of Indian gooseberries?

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@blowerk1216
Hi….actually I’ve never heard of that. Have you tried it before?

Ryan

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Profile picture for carolynhughes75 @carolynhughes75

Sorry you have to deal with this. I also have CIDP so I can empathize with your pain. I currently take 600 mg of R-alpha lipoic acid twice a day. It helps some with the pain. I refuse to take gabapentin or Lyrica due to the side effects.

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@carolynhughes75
Hi…..have you tried Cymbalta? Thanks!

Ryan

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Profile picture for jamessaxo @jamessaxo

Yes Stargate, you are on to it. I am 83.5 and have only just in the last 10
yrs come to understand how nutrition effects our mental and physical
health.
Few seniors get enough vit C and even less B12.
C makes nerves, while B12 wraps them with insulating myelin. Our brains are
packed with myelin. Alcohol , even a little effects it.So I have stopped
drinking it.
My latest concern is SARCOPENIA.
Good luck
James

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@jamessaxo

Hi James

Thanks very much for the information! I looked up the word SARCOPENIA and found it extremely helpful. A lot of the symptoms relate to me! I’m definitely going to research this and see what I can find out!

Ryan

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Profile picture for stargate1965z @stargate1965z

@carolynhughes75
Hi…..have you tried Cymbalta? Thanks!

Ryan

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@stargate1965z
Yes I was taking Cymbalta for a long time. It didn't do anything for the pain.

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Profile picture for stargate1965z @stargate1965z

@blowerk1216
Hi….actually I’ve never heard of that. Have you tried it before?

Ryan

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@stargate1965z I have not yet I’m waiting for a delivery. There is medical evidence, albeit in a rat model, that this product is effective. I will keep you all posted.

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Profile picture for stargate1965z @stargate1965z

@jamessaxo

Hi James

Thanks very much for the information! I looked up the word SARCOPENIA and found it extremely helpful. A lot of the symptoms relate to me! I’m definitely going to research this and see what I can find out!

Ryan

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@stargate1965z did the symptoms occur early in your adult life, usually happens around 30?

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