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Charcot Marie Tooth
Hi,
My name is Virginia. I was diagnosed with CMT 1E and I deal with Peripheral Neuropathy every day. I was on gabapentin and recently got taken off because it was causing dizziness and my balance is already affected. I wear bilateral AFOs and try to stay as active as I can. I love being out in nature. Currently on Celebrex and it’s helping my neuropathic pain as well as my back pain. I’m just afraid of getting addicted to any meds. If I can find the same effects from natural remedies, I am all for it.
Looking to connect with fellow CMTers or anyone taking Celebrex. Also want to learn what other people are doing to manage their pain.
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HugInterested in more discussions like this? Go to the Neuropathy Support Group.
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Hello Virginia @embracethebrace17, Welcome to Connect. The Foundation for Peripheral Neuropathy has a list of supplements that might be helpful for learning more about what others have found helpful - https://www.foundationforpn.org/vitamins-and-supplements-for-nerve-health/. There are quite a few members who have posted about Celebrex but not sure how many also have Charcot Marie Tooth (CMT). Here's a search of Connect with links to the discussions and comments on Celebrex - https://connect.mayoclinic.org/search/discussions/.
You might find these related discussions on CMT helpful to connect with others.
-- CMT (Charcot-Marie-Tooth Disease) - Genetic Testing
https://connect.mayoclinic.org/discussion/cmt-charcot-marie-tooth-disease/
-- Different types of Charcot-Marie-Tooth disease (CMT)
https://connect.mayoclinic.org/discussion/different-types-of-cmt/
-- Charcot-Marie-Tooth disease: Surgery needed after SFN diagnosis
https://connect.mayoclinic.org/discussion/surgery-needed-after-sfn-diagnosis/
Have you looked into any supplements that might help with your neuropathy symptoms?