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The in-between life and death cancer
Cancer: Managing Symptoms | Last Active: 4 days ago | Replies (91)Comment receiving replies
My name is Sharon, I’m truly sorry for everything you’ve going through. You’re not alone here. Good people to bounce things off of
I joined this group because 1. Mayo, I’ve been reading on COPD site. Stage 1V. He has stage 4 lung cancer. Radiation and chemotherapy 7 weeks straight. No results. Did 3 more rounds of stronger chemo. No changes.
He’s participating in a trial that attracts solid tumors. It’s no cure hopefully to add good quality of more time.
He’s almost 2 week past first treatment. He sleeps constantly. His legs are so weak he’s fallen twice. No fluids much or output in 24 hours. Feel like I’m watching him die in front of me. I’m scared but he’s more afraid. I will be lost without him
Try what they offer. Everyone reacts to meds differently. I wish you the very best
Replies to "My name is Sharon, I’m truly sorry for everything you’ve going through. You’re not alone here...."
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Hi Sharon @sbw000, I'm sorry to hear about the challenges that you are both facing. It sounds like he has a variant of lung cancer that is more resistant to treatment than some others. I hope you start seeing some improvement soon from the clinical trial. I know that you are focused on him at this point, but don't forget that taking time to take care of yourself will help you take care of him too. Does he have access to palliative care to help with some of the treatment side effects, including the instability and lack of eating and drinking?
The emotional side of this isn't easy to process. Being scared is to be expected, cancer is scary, changing treatments is scary, an unknown future is scary too. Try to keep communicating; with him, here on Connect, or through an in-person support group. Know that there are others facing similar situations.
Did you find the caregivers group?
https://connect.mayoclinic.org/group/caregivers/
And join me and others with lung cancer in the Lung Cancer group:
https://connect.mayoclinic.org/group/lung-cancer/