Living with Neuropathy - Welcome to the group

@summertime4 @ johnbishop. @rwinney if the feet part of my sciatica is acting up I use my TENS unit on my feet and ice my butt/hamstring As a last resort 1/2 to 1 pain pill. Sometimes nothing stops the pain but a pill unfortunately. I have also started practicing the McKenzie method of stretching as often as I can again all day long. It sucks no doubt I need the support of this group.

@summertime4 Hello there. I see @johnbishop gave you some advice. He's so good at that!

Deep sighhh...I rack my brains about this disease. Your question of, "Why at night?". Well, why when we are sick, since being a small child, does it feel worse at night? I've concluded that our bodies are wired as such. Like a clock. I believe the body's clock winds down for intended evening calmness, only with disease and illness, our purpose of calmness is defeated by pain and discomfort heightening as our worlds become quite, and distraction settles.

It's no great answer but, is a great question. Now, what can we do about it? Magnesium, natural sleep aids, CBD oil, medical marijuana, calming nerve creams, epsom salt soaks. Maybe heat, maybe ice? Perhaps a blanket lifter for bed in case there is friction on your feet from the covers. Do you have a partner who can massage your feet? Are you able to attend physical therapy for myofascial release to get your feet circulating better?

We are all spinning our wheels out here and are all so very different in our pain structure, what works or doesn't work for us. I'm deeply sorry for your pain and you are certainly not alone in foot pain. Many members like @jimhd and @lorirenee1 can vouch for terrible, make you want to cry, foot pain.

I'm glad you posted about your frustration and pain. We are here for you. We'll all keep being neuropathy warriors and lift each other up with ideas for comfort and support.

Many good wishes sent your way for relief and comfort. 💕
Rachel

@bustrbrwn22 Great advice here!

Hi Helen, sorry I did misunderstand you. Thanks for pointing that out. I am glad the frozen shoulder resolved on its own. It takes a while. It makes sense to stop the cause. I feel why do the drugs if you don’t have to. The body puts out pain signals to let you know there is a problem so why take medications to mask the pain to allow more usage. I agree, PT may not always help but worth a try. Knowing I have tried it at times and was unsuccessful, gave me a peace of mind to move on and try something else as you will do. In the mean time does heat or ice help with the pain? Remember, heat allows blood flow to the affected area while ice constricts the blood flow. Best of luck to you. Toni

My peripheral neuropathy was probably caused by chemo drug like Taxol
I’ve finished chemo therapy a year ago Sept 2019 but experience numbness, leg and feet fatigue
NO pain so elect to take no meds like Gabapentin

I’m doing many things like vitamins , exercise and healthy foods . I know some nerve damage dirs not
Regenerate or reverse but I understand that some never will regenerate .

If so does anyone one Have a psibld time frame ?
Not sure if severity but I don’t have pain and can sleep
The fatigue and numbness is there and want to know how to improve & does it improve as it’s been a year after the chemo /radiation toxins

All input is appreciated Norma Zick

@summertime4 Do you have access to THC in the form of either marijuana, medical marijuana or CBD oil? These can be of very significant help if other things are not working, and for some people (not all, my wife says they stimulate her) they help them to go to sleep. Also, have you explored kratom at all. It can be expensive and might not work for you, but some here (like @lorirenee1 ) do get benefits. My wife Linda's feet are definitely worse at night too. Her before bed protocol is to put her feet into very hot water, then apply Penetrex. Or if itchy, Aveeno. Also, now, the magnesium. She is getting to sleep of late. She ALWAYS has a fan blowing on her feet, BTW.

I wish you well, Hank

@normazick Hi Norma, welcome to Connect. My wife got neuropathy in her feet in 2014 as a result of chemo also. She hoped it would improve but it actually has gotten progressively worse, especially the last year and a half. Yours is recent enough (1 year) that you might get better. It's very good that you do not experience pain. All symptoms, including numbness, are a drag, but I believe severe pain is the least preferable. @johnbishop started a discussion recently for people who have numbness w.o. pain. Here is the link:
https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/
Please stay abresat of the neuropathy discussions here, they are immeasurably helpful, and post often, everyone here is uber kind as well as interested in YOU.
Best to you and I hope you get better. Hank

Thanks Hank. The doctor thinks it is now poly neuropathy but I have not gone for the tests. I have been in the house since March 17th when the cardiologist and the vascular surgeon insisted I stay inside and that this Covid is real and dangerous. Three of my neighbors have had the virus and one is still in the hospital. Six of my facebook friends have passed too. Take care and stay safe.

Hi Betty @hazelnut Sorry for your pain. In trying to resolve one you ended up with another. As for a cure for nerve damage, it would depend on the cause and location. It is always best to ask your doctor for advise. Everyone is different. Doing your own research will prepare you to ask your doctor relevant questions. Best wishes Toni

@summertime Hi, I have severe pain in my feet due to neuropathy, but it is also especially bad at night and during sleep. Why at night? Circadian rhythms? I have no clue. I keep my feet elevated when sitting. I can't keep them on the ground, unless walking. I do use a pill that is an herbal remedy for nerve pain, and it helps amazingly well. If is not approved by the FDA, so the moderators here would rather I send private messages about it. If you want more info, send me a private message at lorirenee1 I really have no other good things I use for foot pain except for heat. I use a water spa and a heating pad made for feet, and these things can simmer down the pain. Lori