Living with Neuropathy - Welcome to the group

@sunnyflower

My service dog, Sadie, is my avatar. She's a psychiatric service dog, for depression/anxiety and PTSD. She's my second one.

Jim

@bustrbrwn22 @sunnyflower @avmcbellar @helennicola @hazelnut

Well, since this discussion is about neuropathy, I'll just say that I wish there were an injection for pn. My wife and I have both had cortisone shots for multiple pains. But I do take a low dose of Prednisone, 10mg, prescribed by my neurologist in hopes that it will slow the progression of sfpn in my feet and ankles, numbness in fingers. I don't think it will have any effect on my AN. When I had my flu shot last week, the pharmacist warned me about risk of infection when taking prednisone. I guess sometimes we have to weigh the risks against the benefits of medications.

Jim

@hazelnut Hi Betty. I'm sorry, but no, there is not a cure for neuropathy. There is hope in managing symptoms which may come from lifestyle change, vitamins and supplements, diet, exercise, cognitive behavioral therapy, physical therapy, etc...
and of course medications.

Thank you for your reply. I never had a problem with the nerves until I had that misguided steroid shot. My open heart surgery was less painful than this. Thanks again for your reply. Have a Blessed Sunday.

Wow, when I read all the myriad ways people can get peripheral neuropathy it almost seems like a person is playing Russian Roulette with their life by even doing something so simple as getting a shot. Yikes! @hazelnut I am terribly sorry that this happened to you. Hank

Hi, a word about magnesium. I would not have thought of it as being a sedative but the experience Linda and I have both had the past 3 days seem to indicate that it is. The past two or three days, without realizing it, Linda has taken 3 caps/day (= 480 mg), while intending to be taking only 2 (= 320 mg). She had an extra one in her pill box she thought she had taken out but hadn't. It's been like she has narcolepsy the last two days, she has been sleeping/dozing through most of the day while also sleeping through the night. For me, taking an extra 200 mg at night, 40 min. before turning in, I have slept great! Better than before. No more tossing/turning the first hour. But No daytime issue with sleepiness with me. So far I am very happy with taking added magnesium.

Just FYI, magnesium seems like a good sleep aid so far, but be careful not to take too much. Best, Hank

@rwinney I want a cure for neuropathy I know there is no cure and our life style has to change. Some for the good, some for the bad. I dont like having to bring a cane to an event or not being sble to get out of the pool. The pain is taking it;s toll. Nights are the worse. My feet become so painful I could cry. Why at night? I put them up, then down and nothing works. I am hearing about magnesium and that it benefits seep. I of course bought some. How much should I take and do I take it at night. Does anyone have the awful pain in their feet?

@summertime4, Sorry to hear you are having the neuropathy pain more at night. I would discuss supplements including magnesium with your doctor. I'm no medical expert but they probably will not help if your body is not deficient in the vitamin/mineral you are taking to see if it helps. That said, I have used magnesium lotions in the past on my legs and it did seem to have a calming effect (and it smells good too). The particular brand I tried was recommended to me by another member a few years ago was LifeFlo but I'm sure other brands are probably as good. I also tried the spray version of the magnesium lotion and for me it was awful because it felt sticky and was like spraying sticky oil on my legs. Hopefully some other members will have some suggestions for the pain in your feet at night.

Do you take any medications for your neuropathy? You could discuss splitting the dosage between morning and evening with your doctor or maybe an extra dosage at night to see if it helps with the night time pain.

Here are a few links with some ideas for you. If you also love sweets, sugary stuff, that along with alcohol are a no no if you have PN. They will add to any misery and pain you have.

-- How to treat peripheral neuropathy naturally: https://www.medicalnewstoday.com/articles/326779
-- 8 Easy Home Remedies for Peripheral Neuropathy Relief: https://modernneuropathy.com/8-easy-home-remedies-for-peripheral-neuropathy-relief/

My 3rd night with 250 mg of magnesium and a great night’s sleep (except for a text message that wove I to my dream at midnight). I didn’t have to use the restroom as usual with my IC. I’ve read it has to be that specific one of the 2 types mine has both magnesium oxide and stearate (?)

@LeeAase Hi Lee, 36 hours does sound like a long time. Good to know, thank you. I never had a bad batch. It takes practice to perfect the method. When I made my yogurt in a gallon sized bowl with a lid, I used the warmth of my garage while the sun was still out. After about 8 hours the curdled milk was ready to strain through a cheese cloth. So within a day my yogurt was ready. Luckily, I never had left the milk over night. I was afraid for it to turn into cheese which I do not like at all. As I was growing up, my dad made cheese from scratch using the milk from our goats. I disliked the smell. Thanks again Lee. Do you grow bacteria for bread too? Toni