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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (5972)

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@summertime4

@rwinney I want a cure for neuropathy I know there is no cure and our life style has to change. Some for the good, some for the bad. I dont like having to bring a cane to an event or not being sble to get out of the pool. The pain is taking it;s toll. Nights are the worse. My feet become so painful I could cry. Why at night? I put them up, then down and nothing works. I am hearing about magnesium and that it benefits seep. I of course bought some. How much should I take and do I take it at night. Does anyone have the awful pain in their feet?

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Replies to "@rwinney I want a cure for neuropathy I know there is no cure and our life..."

@summertime4, Sorry to hear you are having the neuropathy pain more at night. I would discuss supplements including magnesium with your doctor. I'm no medical expert but they probably will not help if your body is not deficient in the vitamin/mineral you are taking to see if it helps. That said, I have used magnesium lotions in the past on my legs and it did seem to have a calming effect (and it smells good too). The particular brand I tried was recommended to me by another member a few years ago was LifeFlo but I'm sure other brands are probably as good. I also tried the spray version of the magnesium lotion and for me it was awful because it felt sticky and was like spraying sticky oil on my legs. Hopefully some other members will have some suggestions for the pain in your feet at night.

Do you take any medications for your neuropathy? You could discuss splitting the dosage between morning and evening with your doctor or maybe an extra dosage at night to see if it helps with the night time pain.

Here are a few links with some ideas for you. If you also love sweets, sugary stuff, that along with alcohol are a no no if you have PN. They will add to any misery and pain you have.

-- How to treat peripheral neuropathy naturally: https://www.medicalnewstoday.com/articles/326779
-- 8 Easy Home Remedies for Peripheral Neuropathy Relief: https://modernneuropathy.com/8-easy-home-remedies-for-peripheral-neuropathy-relief/

My 3rd night with 250 mg of magnesium and a great night’s sleep (except for a text message that wove I to my dream at midnight). I didn’t have to use the restroom as usual with my IC. I’ve read it has to be that specific one of the 2 types mine has both magnesium oxide and stearate (?)

@summertime4 Hello there. I see @johnbishop gave you some advice. He's so good at that!

Deep sighhh...I rack my brains about this disease. Your question of, "Why at night?". Well, why when we are sick, since being a small child, does it feel worse at night? I've concluded that our bodies are wired as such. Like a clock. I believe the body's clock winds down for intended evening calmness, only with disease and illness, our purpose of calmness is defeated by pain and discomfort heightening as our worlds become quite, and distraction settles.

It's no great answer but, is a great question. Now, what can we do about it? Magnesium, natural sleep aids, CBD oil, medical marijuana, calming nerve creams, epsom salt soaks. Maybe heat, maybe ice? Perhaps a blanket lifter for bed in case there is friction on your feet from the covers. Do you have a partner who can massage your feet? Are you able to attend physical therapy for myofascial release to get your feet circulating better?

We are all spinning our wheels out here and are all so very different in our pain structure, what works or doesn't work for us. I'm deeply sorry for your pain and you are certainly not alone in foot pain. Many members like @jimhd and @lorirenee1 can vouch for terrible, make you want to cry, foot pain.

I'm glad you posted about your frustration and pain. We are here for you. We'll all keep being neuropathy warriors and lift each other up with ideas for comfort and support.

Many good wishes sent your way for relief and comfort. 💕
Rachel

@summertime4 Do you have access to THC in the form of either marijuana, medical marijuana or CBD oil? These can be of very significant help if other things are not working, and for some people (not all, my wife says they stimulate her) they help them to go to sleep. Also, have you explored kratom at all. It can be expensive and might not work for you, but some here (like @lorirenee1 ) do get benefits. My wife Linda's feet are definitely worse at night too. Her before bed protocol is to put her feet into very hot water, then apply Penetrex. Or if itchy, Aveeno. Also, now, the magnesium. She is getting to sleep of late. She ALWAYS has a fan blowing on her feet, BTW.

I wish you well, Hank

@summertime Hi, I have severe pain in my feet due to neuropathy, but it is also especially bad at night and during sleep. Why at night? Circadian rhythms? I have no clue. I keep my feet elevated when sitting. I can't keep them on the ground, unless walking. I do use a pill that is an herbal remedy for nerve pain, and it helps amazingly well. If is not approved by the FDA, so the moderators here would rather I send private messages about it. If you want more info, send me a private message at lorirenee1 I really have no other good things I use for foot pain except for heat. I use a water spa and a heating pad made for feet, and these things can simmer down the pain. Lori