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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 18 hours ago | Replies (1200)Comment receiving replies
My name is Kim. I was diagnosed with HCM shortly after having an ablation for afib in 2024. After upping the dose of Diltiazem the afib seems to be under control. I started taking Myqorzo (5 mg) a couple of weeks ago. So far at least it does not seem to be helping with symptoms of shortness of breath and fatigue. But I remain hopeful.
Replies to "My name is Kim. I was diagnosed with HCM shortly after having an ablation for afib..."
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@kim48 Hello Kim! I see this is your first contribution to Connect. Welcome to the big-hearted discussion! You are trying to remain hopeful that Myqorzo will help you. I have never taken medication for HOCM but had a septal myectomy in 2022. You may find a more appropriate and helpful discussion, especially about if Myqorzo takes time to have an effect by looking at and asking in one of these two discussion threads: https://connect.mayoclinic.org/discussion/myqorzo-has-anyone-tried-this-new-alternative-to-camzyos/ and https://connect.mayoclinic.org/discussion/anyone-started-myqorzo-5-mg-experience-please/
These medications have been labeled miracles for some, unhelpful by others and for the rest of the people, they work for a while and then they do not. It seems to be unpredictable for any given person. Meanwhile please do learn all you can about HCM, that may be helpful in generating questions for your doctor. https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198. Was your Afib related to HCM? May I also suggest doing an intake with the Hypertrophic Cardiomyopathy Association 4hcm.org where they educate and help people navigate their journeys in living with HCM.