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@jodyjazz I haven't found any such thing, either, Jody. I've experienced it directly for myself. When I ate the cheese, the salmon and the tuna, my platelet count shot up to 495,000. A month after quitting the cheese, salmon and tuna, my platelet count was back in the 300,000's. That's laboratory data, not someone else's opinion.
Replies to "@jodyjazz I haven't found any such thing, either, Jody. I've experienced it directly for myself. When..."
@garyr443 That's certainly sounds like at least a correlation in your case. However, it may not be the cause of the spike.
I have never found a correlation in my own platelet spikes from stress, coffee, certain food, how much I exercise, or whether I was failing to keep smilin', all of which I've heard suggested by others over the years. I tried keeping a journal to try to spot patterns. That was very helpful in identifying things that made me feel worse or better energy-wise, but those things didn't affect my platelet counts.
Rather than disbelieve others, however, my conclusion is that ET acts different in every person. And, as the disease slooowwwwwly progresses and as we age, effects of ET and meds change. Saw that with Dad until he died with ET and of COPD at age 82.
One line of research yet to be meaningfully pursued is the typical trajectory of ET in long-term patients who are fairly well controlled with HU, and how ET interacts with pre-existing conditions. Why, for instance, do some people progress to MF or leukemia and others don't, all things apparently equal? And why does progression occur at such different rates?
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@garyr443
Well I am happy for you that you know what to avoid. Was this also while taking the HU or with out?