Who do you trust for medical information?

Posted by Scott R L @scottrl, 2 days ago

As you may know, on this site there's a discussion about whether AI can be trusted for medical information:
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/can-you-trust-ai-for-health-advice/
It made me wonder -- what sources *can* you trust?

To be honest, I've gotten some bad information from doctors. It's made me wary of snap judgments, and skeptical in general. (By nature, I'm a contrarian anyway.)

What sources of information/data do you trust?
Advertisements for prescriptions or supplements?
Friends (anecdotes, etc.)?
Professionals?
Internet research (which can run the gamut from "Dr. Google" to published research)?
Personal experience?

If you went to a doctor who handed you a pill and said, "Take this right now," would you? (I wouldn't, not without knowing what it was, how much, side effects, etc.)

Interested in more discussions like this? Go to the Just Want to Talk Support Group.

Profile picture for John, Volunteer Mentor @johnbishop

@frouke - What has really helped me is what you mentioned, working with my doctor and one of the things that has helped in the past for me is to plan my conversations with my doctor. Some great tips/suggestions on the Patient Revolution website - https://www.patientrevolution.org/tools.

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@johnbishop I plan what I'm going to say to my neurologist and it helps.

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Profile picture for frouke @frouke

I believe in our God given instincts and we need to make use of them more than ever before, I’m not saying that we should be our own doctor but we need to work with our doctor rather than just following their advice. In years past we looked up to them and believed in them, we never questioned their knowledge and our trust was given without any doubt. Life is rapidly changing and we have to adapt to keep going, I’m grateful for being able to research because there’s so much valuable information out there, it’s not always easy to get the right answers but you have to be diligent and learn how to find the right answers, truthfully I owe my life to research and doctors that listened to me.

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@frouke
I agree! I was taught the same thing regarding a doctor...do what they tell you to do...nowadays things in the medical arena are much different. I had “old school” doctors diagnose me correctly and heal me, but sometimes newer ones totally miss it or just blow it off like it is nothing. And if you speak up or disagree a lot of them just get mad about it. (not all doctors but it’s a crap shoot who will get it right)

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Profile picture for jenben59 @jenben59

@frouke
I agree! I was taught the same thing regarding a doctor...do what they tell you to do...nowadays things in the medical arena are much different. I had “old school” doctors diagnose me correctly and heal me, but sometimes newer ones totally miss it or just blow it off like it is nothing. And if you speak up or disagree a lot of them just get mad about it. (not all doctors but it’s a crap shoot who will get it right)

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@jenben59 You’re so right about that, all the good doctors are retired or plan to we never realized how good we had it.

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Profile picture for frouke @frouke

@jenben59 You’re so right about that, all the good doctors are retired or plan to we never realized how good we had it.

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@frouke
The first batch left when malpractice insurance cost a quarter million dollars because the ambulance chasers switched to Med Mal when no fault automobile was passed.
Gotta find SOMEONE to sue.

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I'm fortunate to live in the Bay Area where we have many great dr's. I am in a healthcare system where if I don't really like the Dr I am seeing, I can easily see another one. It has taken years to find competent Dr's. I 've also gotten assigned to dr's, like the eye surgeon I've recently been seeing that I like very much. Health care these days is difficult. In the system I am in, Dr's often have to take care of so much themselves and aren't given much time between patients. Covid changed care so much. Video appts are pushed. I am not afraid to ask a dr what he is prescribing and why. Honestly, I don't take many meds so it is easy. I will not leave an office unless/until I get questions answered. If a Dr is not ok with that, then I need a new dr. The pharmacy is under the same system. Asking for the manager is very helpful if I haven't already found answers to my questions. Respected cites, like Mayo or Webmd. Yes, one truly has to be an advocate. I found this site bc I didn't feel I was given adequate information on a dx. I have since told the dr so. I think at the time I needed information it was unfortunate timing. I will give the dr the benefit of the doubt. .....this time.

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