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Hydroxyurea and Sun Exposure

Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (63)

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@garyr443

I have nothing but good wishes for you, Gary.

Please give careful consideration to Lori's wise words. She's lived through a lot and has invaluable knowledge.

My husband also has no symptoms from his chronic kidney disease. But if he ignores the diagnosis, he will soon be on dialysis.

Speaking for myself, sensitivity to sunlight is a small price to pay for the multiple benefits of HU:
- easing of the terrible headaches of ET
- relief from the exhaustion of ET
- knowing I'm shoring up my bone marrow against progression.

I'll close by thanking Lori once again for being our angelic monitor.

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Replies to "@garyr443 I have nothing but good wishes for you, Gary. Please give careful consideration to Lori's..."

@janemc two months ago, for about a month, I did have headaches every day that were confined to the right side of my head. They seemed to be worse at night. I was taking two 325 mg aspirin before bed, which barely helped. But then, the headaches went away after a month or so and haven't returned. Now, this was all highly unusual for me. Until then, I hadn't had headaches for many years. It was just something I never had a problem with. Whenever I was asked if I have any headaches, I'd say, "No, I never get headaches." For me, it's the same with nausea and vomiting. I have not had nausea or vomited since two days in 1996, after eating food at a Chinese buffet for lunch one day. I was running to the toilet every five minutes to vomit for two days. Then it stopped. So, food poisoning. But I haven't been nauseous since then and haven't vomited since then, either. Prior to that epidode, I hadn't vomited in 12 years. I enjoyed the episode of "Seinfeld" in which Jerry says exactly the same thing about himself.

@janemc Well, about the kidney disease that I have never had any symptoms of in the 17 years I've supposedly had this disease, I remain skeptical. I have never heard of a disease that no one has symptoms of. It just doesn't happen. At what point would I have any need for dyalisis and how would I know if I'm still asymptomatic?