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Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (243)

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Profile picture for grandmatoni @grandmatoni

@loribmt It's kind of hard to really describe what I call numb. When my leg feels tender and I rub it, the feeling I get is like a numbness. It's not that I don't have any feeling in my leg, I do. It's just a weird feeling. Yes, my oncologist did review the MRI and had ordered the repeat MRI that showed no change. Maybe I'm just a worry wort. I had my blood test this morning and am waiting for the results to see if I need my injection on Thursday. It is so nice to have someone who understands some of what I'm experiencing, and someone I can feel at ease talking with. Thank you. It means a lot.

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Replies to "@loribmt It's kind of hard to really describe what I call numb. When my leg feels..."

Good morning, @grandmatoni I think being a worry-wort is such a human trait! Well, except for cats who think they’ll start to death at 3AM when their bowl is only half full of food yet. LOL.
If your oncologist has reviewed the MRIs, both the original and then subsequent imaging, with no discernible changes then I think you can relax about this being something to lose sleep over. It would be different if these areas on the MRI had enlarged. Whether or not this is correlating with the odd sensation in your leg may just remain a mystery. Does your leg develop this feeling after certain activities?

I know how things like that can eat at us and our brain loves to think the worst. I’m 72 and I swear every day there is some new ‘thing’ that reveals itself. 😅 But I’ve learned over my medical odyssey the past 7 years to not focus on ‘what if’ because most of the time there is nothing amiss! So all the time spent worrying just robbed me of precious time that could be used for doing something productive or enjoyable.
I’d encourage you to adopt that philosophy…IF something happens, THEN you and your doctor will take care of it. But to worry about a ‘what if’ situation only creates stress. It takes practice to refocus but it works! Ha, yes, I am always this perky and annoying. But I’m here if you need to talk. ☺️

Good luck with the blood test today! Maybe you won’t need your injection Thursday. But if you do, I know you realize how amazing it is to have these medications to keep us enjoying life! Hugs.