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Hydroxyurea and Sun Exposure

Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (63)

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Profile picture for garyr443 @garyr443

@loribmt Well, first of all, I'm not suggesting cranberry juice will work for everyone. If it works for me, great. I cured (that means it's gone and doesn't return) Type 2 Diabetes in five months by eating a paleo diet. As long as I continue to eat that diet, I have no worries about diabetes anymore. That experience, i.e, using a simple dietary change to correct a problem without resorting to a (shortened) lifetime of dangerous drugs is what we should all be looking into. Food is not a dangerous drug and our ancestors knew this, long before Big Pharma began making billions while killing millions. And don't give me that crap about how everyone died at 30 before the twentieth century. I'm a genealogist and I know how how long my ancestors lived, which, in most cases, was just as long as people are living today.

Only one of the four doctors I mentioned said my eGFR is "wavering between 3a and 3b." I have never been at 3b. She also told me (you ignored this) that in 2024, my eGFR fell from 3a back 2, where it was in 2009. She had no explanation for this. Another thing, in 2009, when I was first disgnosed with kidney disease, the only criterion for that diagnosis was my GFR. Two or three years later, they began calling it the "eGFR," or estimated glomeruler filtration rate. Why is it only being "estimated" now? Still, I haven't had one symptom of the disease.
Yes, I'm aware of the potential negative effects of cranberry juice. I have carefully studied this and other non-pharmaceutical options. I am willing to accept the risks and I am not promoting this as something for everyone. I'm very much aware that we all have different stories. Congratulations on yours, by the way.

My latest platelet count is 301,000. Normal, in other words. It will be tested again this Friday and whatever it is will be the baseline I'll be comparing my results from the cranberry juice with during my one month trial of the juice. My hematologist backs my decision on this. We've known each other for 12 years and he has a very good understanding of me as his patient.

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Replies to "@loribmt Well, first of all, I'm not suggesting cranberry juice will work for everyone. If it..."

@garyr443

I have nothing but good wishes for you, Gary.

Please give careful consideration to Lori's wise words. She's lived through a lot and has invaluable knowledge.

My husband also has no symptoms from his chronic kidney disease. But if he ignores the diagnosis, he will soon be on dialysis.

Speaking for myself, sensitivity to sunlight is a small price to pay for the multiple benefits of HU:
- easing of the terrible headaches of ET
- relief from the exhaustion of ET
- knowing I'm shoring up my bone marrow against progression.

I'll close by thanking Lori once again for being our angelic monitor.