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Squamous Cell Carcinoma post transplant
Transplants | Last Active: 4 days ago | Replies (58)Comment receiving replies
Good morning @m1rmiller
It's so nice to hear from you! 😊 Thank you so much for sharing about your experience with skin cancer and your med change.
You are exactly the person I was hoping to speak with!
I think there will be a med change in my future away from Tacrolimis too.
How are you doing with the Sirolimus and Prednisone now?
(Also, do you take any additional immune suppression or just Sirolimus and Prednisone?)
Thanks a million for sharing any information or experience you now have on Sirolimus.
I really appreciate getting first hand information from someone actually taking the drug.
Replies to "Good morning @m1rmiller It's so nice to hear from you! 😊 Thank you so much for..."
@hello1234 , I don't know if we discussed this but I see Derm every 3 months. I also has 6-7 Mohs. My last one was Wednesday on my scalp. It was huge and deep. Took 3 re- cuts. Derm said it my grow back. If it does I will need radiation. 😵💫
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@hello1234 Doing fine with the Sirolimus/Prednisone regime now. Only those two right now for the suppression. For what it's worth, my Nephrologist told me that there are some who advocate using Sirolimus for others because there may be some evidence that it extends life. Keep me posted and feel free to ask me questions anytime