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tascamman avatar

How's your quality of life living with MDS?

Blood Cancers & Disorders | Last Active: May 30 5:01pm | Replies (20)
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Profile picture for Colleen Young, Connect Director @colleenyoung

@nini09, I'm glad that the medication is working. Side effects of treatment that helps the disease, but not overall quality of life are challenging to deal with. You might find this related discussion helpful:

- Contolling Hydroxyurea fatigue by time of day you take the medication https://connect.mayoclinic.org/discussion/contolling-hydroxyurea-fatigue-by-time-of-day-you-take-the-medication/

How long have you been living with MDS?

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Replies to "@nini09, I'm glad that the medication is working. Side effects of treatment that helps the disease,..."
tascamman | @twitt1949 | May 30 5:01pm

@colleenyoung I think I've had it for 3-4 years only from symptoms. Weakness, thin skin, bleeding easy and bruising etc. I wasn't confirmed until about 6 months ago.

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