Night neuropathy pain

Posted by waters @waters, Mar 4 9:58am

I have had neuropathy for 2 years neuropathy Dr did nothing. My main dr just tried pain pills and the two never worked at night terriable pain in feet and legs have to get up rub them and wait about a hour sleep fir 2 up again. Day no pain but buring in bottom of feet. Anyone have any ideas? Im 75 on methotrexate for Ra for 15 years.

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Profile picture for botterd @botterd

@mrmacabre interesting. I have a bed where i can raise the feet. I'll try that tonight. Thanks.

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@botterd Did it work?

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Profile picture for mrmacabre @mrmacabre

@mrmacabre I slept well that night but I'm not sure if it was because of the raised feet, the Tylenol or just luck of the draw. I was exhausted that night. Last night i just tried the raised feet and it was a typical night. My insomnia is pretty bad and the Arimidex doesn't help. Each night is a crap shoot.

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Profile picture for botterd @botterd

Yes I am taking ALA. I have to be careful with magnesium since it can cause diarrhea and I had 3 months of that during my chemo. The Tylenol seems to help me. Everyone responds differently.

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@botterd
Have you tried different kinds of magnesium? They do not all cause diarrhea to the same extent. I believe magnesium oxide is the worst. Magnesium glycinate is much less likely to cause diarrhea; I have never had an issue with it and I'm told it's the best to take at night to help the muscles relax. I take it to help prevent night leg cramps. For sure everyone is different. I have been trying different things for years for leg cramps and the burning of PN. ALA has been to top performer for me!

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Profile picture for botterd @botterd

The neuropathy in my feet in node making it hard to sleep. The buzzing is non stop. I can only get a few hours of sleep each night. I've tried wearing different socks, or no socks. I'm taking extra strength Tylenol. Am considering rubbing on lidocaine. Am also considering seeing an acupuncturist. Any suggestions to calm the buzzing so I can sleep?

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@botterd
About two years ago I'd finally had it with the tingling and burning in my feet. I couldn't sleep, kept waiting to smell the smoke! 🙂 My PCP agreed with me that it was neuropathy (the wait time for a neurologist appointment at the time was about 9 months, so we decided to treat the symptoms, which is what a neurologist would do after conducting tests that would likely show what we already knew). He put me on 10 mg of amitriptyline. It worked! No more burning. Sleep, glorious, sleep! But over time I had to increase to 30 mg. That's when I came here and found out about R-ALA (I buy Vegan Labs), which I began using. It appeared to stop the progression, so I am in the process of weaning off the amitriptyline to see if I can do without it at all.
I wish you well!

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Profile picture for botterd @botterd

@mrmacabre I slept well that night but I'm not sure if it was because of the raised feet, the Tylenol or just luck of the draw. I was exhausted that night. Last night i just tried the raised feet and it was a typical night. My insomnia is pretty bad and the Arimidex doesn't help. Each night is a crap shoot.

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@botterd That really sucks, I'm sorry to hear that.

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Profile picture for trishdub @trishdub

@botterd
About two years ago I'd finally had it with the tingling and burning in my feet. I couldn't sleep, kept waiting to smell the smoke! 🙂 My PCP agreed with me that it was neuropathy (the wait time for a neurologist appointment at the time was about 9 months, so we decided to treat the symptoms, which is what a neurologist would do after conducting tests that would likely show what we already knew). He put me on 10 mg of amitriptyline. It worked! No more burning. Sleep, glorious, sleep! But over time I had to increase to 30 mg. That's when I came here and found out about R-ALA (I buy Vegan Labs), which I began using. It appeared to stop the progression, so I am in the process of weaning off the amitriptyline to see if I can do without it at all.
I wish you well!

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@trishdub what is R-ALA

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Profile picture for judyc85 @judyc85

@judyc85
Alpha Lipoic Acid. Apparently there are two versions. The one that is not the R one is synthetic. I have no idea if it makes a difference, but “everyone” says to get the R version. So I’ve never used the synthetic version. But the R definitely works for me. 🙂

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Profile picture for trishdub @trishdub

@botterd
Have you tried different kinds of magnesium? They do not all cause diarrhea to the same extent. I believe magnesium oxide is the worst. Magnesium glycinate is much less likely to cause diarrhea; I have never had an issue with it and I'm told it's the best to take at night to help the muscles relax. I take it to help prevent night leg cramps. For sure everyone is different. I have been trying different things for years for leg cramps and the burning of PN. ALA has been to top performer for me!

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@trishdub I haven't started the magnesium glycinate yet since I had diarrhea for 3 months during chemotherapy. Not anxious to go through that again. So far, the ALA hasn't made any difference.

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Profile picture for trishdub @trishdub

@botterd
About two years ago I'd finally had it with the tingling and burning in my feet. I couldn't sleep, kept waiting to smell the smoke! 🙂 My PCP agreed with me that it was neuropathy (the wait time for a neurologist appointment at the time was about 9 months, so we decided to treat the symptoms, which is what a neurologist would do after conducting tests that would likely show what we already knew). He put me on 10 mg of amitriptyline. It worked! No more burning. Sleep, glorious, sleep! But over time I had to increase to 30 mg. That's when I came here and found out about R-ALA (I buy Vegan Labs), which I began using. It appeared to stop the progression, so I am in the process of weaning off the amitriptyline to see if I can do without it at all.
I wish you well!

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Tb melhorei com 10mg de amitriptilina
Tb precisei aumentar dose r passei a efeitos colaterais
Estou tomando AAL 600mg 2 xs e CBD
Lidocaina nos tornozelos á noite. Aguardando THCV chegar dos USA

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Profile picture for botterd @botterd

@trishdub I haven't started the magnesium glycinate yet since I had diarrhea for 3 months during chemotherapy. Not anxious to go through that again. So far, the ALA hasn't made any difference.

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@botterd
How long have you been on the ALA? My doctor told me to give it a good 3 months before deciding if it had any impact.

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