@ddb77 Yes, it is very hard to get diagonised and harder to find a derm that cares/knows about it. I had one derm that knew a little about it but he moved out of state. I have been dealing with this for many years. I would have places on my face that would get so bad they bleed. Those have been frozen off along with many many others. I stared using LaRoche-Posey gentle foaming cleansing oil for body wash. I had used Olay for many years and then the derm recommended Dove. Olay has a new Super Serum body wash that is good and cheaper than the LaRoche-Posay. I just started using the La Roche Posay Cicaplast Balm B5+ after seeing it recommended here. I also use sunscreen and wear clothing with sun block. I wear long sleeves and long pants year round. Nice to hear they are researching and may find a cure.