Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
I read the same review a couple of months back and will post the link to it here as you really should read it before purchasing. He tears some pretty big holes in the claims made for this product. I would not recommend this thing after reading this review. Here it is:
https://sciencebasedmedicine.org/recognizing-dubious-health-devices/
Thank you for welcoming me to this group. I am looking forward to sharing and learning about this condition.
@kazz30 @cwallen9 Hi there, I was going to buy the Rebuilder as well, and looked on eBay to see if anyone was selling one. A chiropractor was selling his, because he said he did not generally have enough neuropathy patients to keep it. We talked back and forth, and the more we talked, the more I thought he really was selling it because it did not work. I do not remember why, it was so long ago. But I sensed that he was not legit, at all, and did not buy it. It sold on eBay for 500 bucks, brand new. He never got a taker. I too, suffer from severe foot neuropathy. Be safe, Lori Renee
@jesfactsmon @jimhd Hi guys, Just read the review by Steven Novella, and I am glad I trusted my instincts, and never bought it. Great article, and I am actually gonna reread it.....Thanks, Lori
Good afternoon @jeanlynne, welcome to Connect and in particular, the Neuropathy group. Have you received a neuropathy diagnosis? Members of this group have many forms of neuropathy. We often find a way to share symptoms and treatments. None of us are medically trained to diagnose or prescribe. We do have a jolly bucket full of experiences and a lot of practice in squeezing the joy out of every day.
Would you be comfortable sharing some of the symptoms that you have experienced? What are you hoping to gain from being part of this public forum? How in the world did you find us?
May you be healthy and content.
Chris
Yes, would participate
Mayo Clinic expands in-person care on all campuses
May 8, 2020
Mayo Clinic will expand in-person care on all of its campuses as COVID-19 executive orders are lifted for elective procedures by governors in Arizona, Florida, Minnesota and Wisconsin.
"Our patients' health and safety is always our top priority," says Amy Williams, M.D., Mayo Clinic Executive Dean for Practice. "We have taken several extra precautions to safely offer in-person care."
Mayo Clinic has implemented enhanced cleaning, masking, testing and screening protocols for staff and patients. In addition, due to social distancing and the executive orders, our communities have experienced a flattening of the curve with a plateau of cases expected through the remainder of the year.
"Based on this, Mayo Clinic can begin seeing patients whose care was deferred and seeing new patients who need access to Mayo Clinic care," says Dr. Williams.
Update: Finally, finally have a diagnosis. I have Lyme Disease, and an additional parasite. Will not know until I complete my 6 month series of a protocol treatments if that is what has caused my neuropathy. I am hopeful that that is it, but am now in Phase 2 of 3 for Lyme along with goat medicine (that’s right...g-o-a-t antibiotic) for the parasite. Will again post when I know for sure. Am heading off to the Mayo Lyme board to see what I can find out there about these new developments.
Good evening, @southwind Wow! That took some doing. Did you expect Lyme disease? If not, this is really a new development. Please continue to share with Connect. Your words, your story, with lots of sharing, will help so many others who are seeking answers.
Be safe and protected,
Chris
@southwind Answers are good! I'm glad you can piece your puzzle together.