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Extreme Insomnia Due to Inability to Lie Still at Night
Parkinson's Disease | Last Active: 1 hour ago | Replies (28)Comment receiving replies
@vi30295 Ugh, thank you for your post. You are definitely not alone, my mom has Lewy Body dementia and is suffering the same way with lack of sleep , up and down at night not sitting still, checking the house. She may sleep for an hour or two but up again and exhausted with legs so weak she can barely walk . Her neurologist is recommending Belsomra.
It's difficult to know when there are too many drugs involved and they're having a negative effect or timing of them is wrong or it's just the disease progression.
Does anyone have experience with Belsomra for Lewy Body dementia?
Replies to "@vi30295 Ugh, thank you for your post. You are definitely not alone, my mom has Lewy..."
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Hi Rachel @rwinney, Not sure if you have seen this discussion on pain control for Lewy Body dementia but the first post in the discussion has link on medications and a video series that might be helpful - https://connect.mayoclinic.org/discussion/pain-control-with-lewy-body-dementia/.