TYMLOS AND TITRATING DRUG

Posted by harryboy7 @harryboy7, Jul 9, 2025

I have read a lot about Tymlos. Several people on this support group talked about one click, 2 clicks....and so on. Talking about doing less of the drug and then working up to the ordered dose.
I really like this idea. I am a retired hospital RN. We did this often, especially with some of the IV drugs we did.
I just got my first shipment of Tmylos. I have not started yet. My dose is 80mcg. It is set for that dose. I talked to Tymlos on the phone. They said you can't do that. I am curious about the people who do this.
Also they say the injection spot is only on the belly. There are several SQ injections site. Tymlos says only the belly for the shots. If we are giving daily shots on the belly...My belly will be a wreck. Feed back? Thanks Robin

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

I'm 70, female, and found out about my osteoporosis by fracturing my spine. I have been on Tymlos a full year. Started at the full dose; I want it to work! I don't ever want pain like that spine fracture again.

DEXA after 7 months showed gain of a full pint in the spine, from -3.1 to -2.1 (that is just osteopenia now). Never going back to osteoporosis again.

REPLY
Profile picture for moazpa @moazpa

@njx58
Just to be clear, 80 mcg was not the only dose tested. In the earlier studies, they were all tested. There is an increased efficacy with each dose increment. After six months, 80 µg increased bone by 4%. 40 µg, the equivalent of four clicks, increased it by almost 3%. 20 µg by just under 2%. Placebo patients lost a percent as expected.

I'm up to 5 clicks.

Jump to this post

@moazpa This is very helpful information. Thank you. I am currently at 4 clicks and hoping to get to the max, but good to know that I can still have benefit even at my current level.

REPLY
Please sign in or register to post a reply.