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Has anyone noticed personality changes in kidney transplant patients?
Caregivers | Last Active: May 30 5:21pm | Replies (8)Comment receiving replies
@gingerw
Thanks for writing. I wish my spouse was open to any kind of counseling alone or with me but he is not at all. That is very very clear from my talking to him about it. I went into counseling for myself during Covid19 for over two years, but it did very little to help me. I am an extrovert super involved in many groups involving hobbies, museums, quilting and more and it all ended. I went into my first in life depression over 6 yrs ago and it is with me like a shadow due to still living isolated. Friends and family have departed support also. I'm out of ideas. The transplant team doctor we saw had come from John Hopkins Medical beforehand and she had heard of many same/similar issues my spouse has been having In patients there. What was sad though was she had no suggestions to improve my spouse' low quality of life all this time. I feel no one can relate to all this. I appreciate your writing. I think most people in a similar situation like us stay silent.
Replies to "@gingerw Thanks for writing. I wish my spouse was open to any kind of counseling alone..."
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@dotygl Perhaps if you can return to counseling even if it is by yourself, for yourself? In my opinion, you owe that to yourself.
Over the last 5 years, my health has changed pretty dramatically. This we had planned to do as a couple, and I had planned to do solely, have been nixed. I can no longer physically or emotionally do what was on the list of "want to/gotta do this..." How does this change the relationship with my husband? He continues to go off on his solo trips by motorhome or motorcycle. He continues to head off in the morning sometimes, returning late in the day, doing errands and whatnot then taking his time coming home. I have only asked him once to accompany me to my medical appointments; he does not volunteer to go.
How do I cope? By journaling, seeking counseling for myself [like your husband, he won't consider it], being involved in what things I can do, that have meaning for me. We live pretty rural.
Ginger