← Return to Safety after transplant: When is it safe to go to events, to travel?

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@pgruetz This is a good question that even our transplant team and local nephrologist have given us zero advice about. My spouse received his kidney over 7 yrs ago and the first 14 months he had many problems -rejection, low hemoglobin 8 months, CMV virus and then all was good in blood labs. Six wks later COVID-19 arrived. We were living isolated before Covid19 arrived and we still do. Me as his healthy wife also lives isolated: no group settings, no restaurants, no one in our home visiting and rarely inside friend's homes, no clubs ,movies, galleries and such. Last year he had 6 UTI's in 10 wks and ended up in hosp for 6 days on IV med for that ,which did not work and while in hosp he got COVID-19 first time and brought it home to me. THe hospital doctors,nurses and more we explained repeatedly to wear a mask (we did) and most would not put one on. I was livid and very upset about all this. He was sick over 4 months and not able to do anything but recover from being sick. His immunity is low being on these immunosuppressants and with so many people who are sick with anything are 'out and about not wearing a mask and such, it has made us lose more faith in public and also in our hospital system too. We are home 99% of the time for over 7 yrs.. This is our choice and it is the hardest journey we've been on. Harder than chemo for 9 months--at least then there was light at end of tunnel. Transplant would be easy if taking these meds was not required. YOu have to make up your own mind. Life is not fair, but it is your choice. My worry as the wife is bringing home a sickness.

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Replies to "@pgruetz This is a good question that even our transplant team and local nephrologist have given..."

@dotygl Hi. I am so very sorry for what you guys are going through. Boy when you say life is not fair you are telling the truth. I had a full liver transplant two years ago. After 2 months in AZ Mayo sent us back home to CO. And while I have had issues (still have stenosis, CMV, blood clots, etc.) it sounds like I have been much luckier than you guys have been. My only reaction to TAC was headaches at first and gut issues still. But Mayo has reduced my dosage of TAC a number of times over the last two years. While I have been careful always and do the right things I have only been sick with stuff I caught two times in two years. I now go to the stores , grocery shopping, ball games, we have even hosted a party with 30 friends and family at our house. No issues. I get out of the house every day. I grieve and feel guilty that you guys are 99% isolated. My only two thoughts are one Mayo told me when my headaches were bad that they could try another immunosuppressant other than TAC. I said no if TAC was what they recommended. Maybe you guys could ask about that ? Also they have steadily reduced my TAC from 4 mg per day ( 2 am, 2 pm) to now 1 a day (.5 am, .5 pm). If your husband gets sick from the low immune system maybe they could reduce your dosage ? Mayo may have other rabbits up their sleeve to try if things are going so badly. I am so sorry for what you guys are going through. Prayers up. Best of luck.