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DiscussionSafety after transplant: When is it safe to go to events, to travel?
Transplants | Last Active: 9 hours ago | Replies (10)Comment receiving replies
Replies to "@pgruetz This is a good question that even our transplant team and local nephrologist have given..."
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@dotygl Hi. I am so very sorry for what you guys are going through. Boy when you say life is not fair you are telling the truth. I had a full liver transplant two years ago. After 2 months in AZ Mayo sent us back home to CO. And while I have had issues (still have stenosis, CMV, blood clots, etc.) it sounds like I have been much luckier than you guys have been. My only reaction to TAC was headaches at first and gut issues still. But Mayo has reduced my dosage of TAC a number of times over the last two years. While I have been careful always and do the right things I have only been sick with stuff I caught two times in two years. I now go to the stores , grocery shopping, ball games, we have even hosted a party with 30 friends and family at our house. No issues. I get out of the house every day. I grieve and feel guilty that you guys are 99% isolated. My only two thoughts are one Mayo told me when my headaches were bad that they could try another immunosuppressant other than TAC. I said no if TAC was what they recommended. Maybe you guys could ask about that ? Also they have steadily reduced my TAC from 4 mg per day ( 2 am, 2 pm) to now 1 a day (.5 am, .5 pm). If your husband gets sick from the low immune system maybe they could reduce your dosage ? Mayo may have other rabbits up their sleeve to try if things are going so badly. I am so sorry for what you guys are going through. Prayers up. Best of luck.