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Essential Thrombocythemia treatment with Besremi

Posted by garyintlv @garyintlv, Jan 28, 2025

At my last appointment with my haematologist 2 weeks ago, he gave me the choice of starting HU or Besremi injections every two weeks. After we discussed the pros/cons I decided to go with the Besremi but had to get approval from my health fund which I received today.

I am away overseas and will see my family doctor when I return to get referrals for ECG, blood tests etc..
I will have to go to the health fund clinic for the first 2 injections under supervision but after that I do it myself. It will be a bit of a pain travelling with the injections because they need to be kept 2-8°C (36-46°F). I am thinking of investing in this: https://4allfamily.com/products/portable-medical-fridge-usb-insulin-medicines (any better ideas welcomed).
https://pubmed.ncbi.nlm.nih.gov/38438627/
I will report back after I start the Besremi.

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cariadk | @cariadk | May 26 7:22am
In reply to @garyintlv "I have a dry mouth and my sleep is affected from time to time. Some nights..." + (show)
Profile picture for garyintlv @garyintlv

I have a dry mouth and my sleep is affected from time to time. Some nights I have trouble falling asleep and sometimes I fall asleep but woke up 1.5-2 hours later and then am awake for an hour os so before I can fall asleep again. It is not continuous but comes and goes. I don't stress about it, just read my book until I am ready to sleep.

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@garyintlv that happens to me too

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conniekostiuk | @conniekostiuk | May 26 7:46am

I have just had my 7th Besremi injection. I worked with Besremi directly when trying to get the medicine. You may want to contact them. They told me that they are working on a possible refrigeration solution themselves. I may buy this one you have here. I can't do anything for longer than 2 weeks at a time away from home. Look them up...Pharma Essentia manufacturers Besremi. FYI..side effects ok for now!!

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