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How to decide whether to take Camzyos or have surgery?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 hours ago | Replies (40)Comment receiving replies
@walkinggirl Thanks for your thoughts. My Chart allows me to send my records to any hospital i want so have plans to send them to Mayos.
Have looked through doctors at Mayos and wondered if you just picked someone or whether your regular cardiologist set it up.
2 guys were listed for me to see, but neither one had significant credentials or do the surgery. How did you handle that?
I've had the same issue at UTSW just being assigned to somebody who happens to be in the HCM unit, but apparently not a specialist in the disorder.
Replies to "@walkinggirl Thanks for your thoughts. My Chart allows me to send my records to any hospital..."
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@doctorboo1 My cardiologist referred me. All of my tests and maybe notes were sent to Mayo. I believe there is a a HCM group in the cardiology department. I was accepted as a patient within a couple of weeks and given a patient number and invited to set up a patient portal. That was Feb-March 2022. In March I was given a phone appointment in May with Dr Eleid. Then my surgery was scheduled for Thursday July 21st after 2 days of tests and interviews on Tuesday and Wednesday. My surgeon was Dr Schaff, many others on Connect mention Dr Dearani. I did not know who would be performing the surgery until a couple of weeks before when I was sent the busy schedule for Tuesday and Wednesday. All those who perform septal myectomies at Mayo are the best. That is how it happened for me. One must be an active advocate for themselves and be a squeaky wheel needing grease.