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Phlegm and Saliva filling in the mouth after tongue sarcoma

Posted by wretired2000 @wretired2000, Jun 15, 2022

My husband had a sarcoma of the tongue and throat He was diagnosed in 10/20 and has been cured by radiation and immunotherapy. Now his mouth fills with mucus in great Quantities preventing him from being able to swallow food and also affects his speech. He has been on a feeding tube for over a year. The doctors do not know how to stop the flow. Next step to try is hyperbaric. Any one out there that has success with dealing with this problem.

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lizzyj58 | @lizzyj58 | May 25 7:33am
In reply to @jap1 "@vvlaraia My husband is in the exact situation you are. We will go wherever for help,..." + (show)
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@vvlaraia

My husband is in the exact situation you are. We will go wherever for help, but there seem to be no options. We do appreciate that the cancer has not returned, but frankly, we were not prepared for the long-term consequences of the radiation. Any suggestions are welcome.

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@jap1 Is there a Memorial Sloan Kettering nearby? My husband went there for head & neck cancer. Excellent hospital and wonderful doctors and nurses. They really care about quality of life. We saw Dr. Givi, surgeon, Dr. Abou Yehia,radiation dr and Dr. Wong , medical oncologist. We are lucky to have MSK here in NJ, 3 different locations. Some people come here and stay in local hotel/ motel.

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vvlaraia | @vvlaraia | May 25 2:16pm
In reply to @jap1 "@vvlaraia My husband is in the exact situation you are. We will go wherever for help,..." + (show)
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@vvlaraia

My husband is in the exact situation you are. We will go wherever for help, but there seem to be no options. We do appreciate that the cancer has not returned, but frankly, we were not prepared for the long-term consequences of the radiation. Any suggestions are welcome.

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@jap1 Yes, we weren't prepared for all the consequences either. I will let you know if I find anything for any of these long term effects and if you do, please let m know as well. Vicky

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