Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

wilcy | @wilcy | Jan 28, 2020

I also have lumbar spinal stenosis! Have tried everything except stimulator wires in back! Just wasted $60 on cbd oil!

John, Volunteer Mentor | @johnbishop | Jan 28, 2020

@nukhan and @wilcy, have you thought about alternative types of therapy to help with your pain symptoms? There is another discussion which other members have found helpful here:

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

maryv449 | @maryv449 | Jan 28, 2020

In reply to @wilcy "I also have lumbar spinal stenosis! Have tried everything except stimulator wires in back! Just wasted..." + (show)

Have you tried cold laser therapy? i have been using it and it has made a world of difference, I can even sleep all night through without waking up with the burning pain. I bought mine at Amazon for $129. and I am so glad that i did. 2 of my friends bought one too and they are experiencing great results too. My brother in law uses it for his shoulder and getting relief too. The good thing is with Amazon is you can return it if you don't like it. Good luck with whatever you choose. Neurapathy is a miserable thing to have.

Rachel, Volunteer Mentor | @rwinney | Jan 28, 2020

In reply to @swartzki "I'm sorry. Y'all come here for support, not my garbage thoughts. Keep up the fight." + (show)

Not true. It goes both ways. Here for you.

maryv449 | @maryv449 | Jan 28, 2020

In reply to @rwinney "Not true. It goes both ways. Here for you." + (show)

I do not know why someone would try to bully you. You are in pain and you are seeking help, you seem like a sweet person. Do NOT listen to some idiot, report them to the moderator. How dare they do that. We are here to help each other not mock or bully. Good luck in your quest. I am finding relief and would be glad to tell you all about it, if you are interested.

wilcy | @wilcy | Jan 28, 2020

In reply to @maryv449 "Have you tried cold laser therapy? i have been using it and it has made a..." + (show)

Tks, am cking out

summertime4 | @summertime4 | Jan 28, 2020

In reply to @swartzki "Well, skin biopsy is positive for sfn. Now what? My husband is not supportive. He told..." + (show)

@swartzki I am feeling your pain. It is an awful situation you are in. It is both physical and emotional. Please find a doctor who can help you. Pain from neuropathy is bad and often leaves us feeling vulnerable. It sounds like your husband (hopefully x very soon) feeds on that. While you seek a doctor also seek a GOOD LAWYER. Do not give up what you have and worked so hard for. Emotional pain triggers physical pain. Please do not give up.

Jim, Volunteer Mentor | @jimhd | Jan 28, 2020

In reply to @swartzki "I'm sorry. Y'all come here for support, not my garbage thoughts. Keep up the fight." + (show)

@swartzki

I'm sorry that you're putting up with your husband's narcissistic behavior. I find it offensive and I've never met him. Has he always been this way? What you describe is spouse abuse, and you shouldn't have to go on being his target. Have you talked with a counselor about this?

Have you done anything to protect your money? Any ideas how you can do that?

No apology is needed. Support goes both ways. Sometimes we can give it and sometimes we need to ask for and accept gift of compassionate care. You have many supporters here.

I would suggest that you give serious thought to an escape plan. I don't know what that would look like, but you are worth the effort to get out from under his bullying. I promise to pray for you.

Jim

margaretob | @margaretob | Jan 28, 2020

In reply to @johnbishop "Hello @margaretob, welcome to Mayo Clinic Connect. I know it must be hard not being able..." + (show)

No appointment, Doctor does not take my insurance. Back to the CLINIC tomorrow if I can move my legs. I hate going to the emergency room for this pain. I am stretching and trying to walk, the GABAPENTIN 300 mg is not helping yet. How long does it take to kick in? M.

margaretob | @margaretob | Jan 28, 2020

In reply to @maryv449 "Have you tried cold laser therapy? i have been using it and it has made a..." + (show)

What is COLD LASER THERAPY? I will try it to take the pain away, ANYTHING RIGHT NOW. Took two ADVIL and my GABAPENTIN 300 mgs. and my insulin and am stretching. NOTHING is doing anything right now. 11 P.M. attack still lasting at 11 20. I AM NOT GOING TO THAT EMERGENCY ROOM AGAIN...M.