@karukgirl I am 72. I don't have severe ohcm but I noticed at 48 yo the shortness of breath ON exertion and how I couldn't do workouts or hikes (steep spott) anymore. I attributed it to getting older. As years went on, I could do things like help clean/paint/remodel rentals. And carry 5 gal buckets of paint. Finally by 67, I finally started really digging into what was wrong. My PCP was no use and didn't ever do PFT for breathing or recommend a cardiologist. I dodged some bullets on the journey and ended up at a COE in Kansas City MO. I am on Myqorzo now, since March. I never got dizzy, chest pain, passing out, etc, so I would say it is not severe. It was ALWAYS the exertion part that got me. My septal thickness is 16mm. I am assuming I just don't meet the criteria for open heart surgery, or even an alcohol ablation (not my first choice imo). The dr did say that on myqorzo, there should be no additional thickening of the heart muscle and that it can improve/remodels the heart muscle. I also read, when you stop myqorzo, within 24 hours the effect reverses. Weird. At the cost of myqorzo at 108,000 a year vs open heart surgery, I don't really see a difference! The first cardiologist bunch I saw couldn't even diagnose the OHCM even after I asked the nurse about additional testing for more info. (since my problem started at age 42, I wanted to get to the root of it all) She said if the dr thought I needed them, he would have ordered them! Four of the geniuses discussed my results and flipped a coin between mitral valve replacement or a pacemaker. I got the pacemaker. They said chronotropic incompetence. Long story on that. Do patients not get a say on how OHCM is treated? I am tolerating myqorzo at 5mg ok so far but dr wants to increase it already. We changed metapropol from 100mg down to 50 mg bc of fatigue side effect. I said to just change 1 thing at a time. I know St. Lukes is an excellent med center and excellent reputation. I used to be able to power up steep little trails in my day! I tend to ramble. I am 73 in August and relatively healthy.