← Return to Primary Myelofibrosis diagnosis in 40’s

Discussion
Comment receiving replies
Profile picture for scottmatteo @scottmatteo

@kasey78 ask as many questions as possible. The team in BMT at Mayo is large educated and well oiled. Pre BMT you’ll meet with a nurse and Doctor. Then many great PAs NPNs etc. nursing staff is phenomenal caring and of course familiar with what to expect. If you’re pushing toward a transplant you’ll want to get DNA testing so they can find a match for you the longer they have to look the better. Please ask anything I’m happy to answer the best I can. Many websites can give you lists of questions etc MPN etc Mayo has a good list. There is a book at Mayo that is a bit dated but thorough in what to expect at each stage of your journey. Think it was a coupon for a free BMT book and I’m sure you could ask one of the nurses. Be positive strong and know it can always be worse no matter how shitty you feel. You can do this and thrive.

Jump to this post


Replies to "@kasey78 ask as many questions as possible. The team in BMT at Mayo is large educated..."

@scottmatteo
Thank you!!!!