Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Rachel, Volunteer Mentor | @rwinney | Dec 17, 2019

In reply to @ginthert "Dang.... Tell your doctor to fight....it is worth it" + (show)

Thank you for your advice.

maryv449 | @maryv449 | Dec 17, 2019

In reply to @resawaller "Good morning! Another day of nerve pain, no sleep, and so tired of hurting everyday! Will..." + (show)

Try googling: ultrasound therapy treatments for pain and see if you want to try ultrasound treatments.

wilcy | @wilcy | Dec 17, 2019

In reply to @maryv449 "Try googling: ultrasound therapy treatments for pain and see if you want to try ultrasound treatments." + (show)

Didn’t work on my neuropathy! Insurance wouldn’t cover it!

steeldove | @steeldove | Dec 17, 2019

In reply to @johnbishop "Thanks @steeldove - I think this is the research you mentioned. Researchers Explore A Drug-Free Idea..." + (show)

My daughter, who has suffered from migraines for years, has ordered green lights for herself and for me. I'm eager to see if it helps at all with neuropathy, and will post updates here.

maryv449 | @maryv449 | Dec 17, 2019

I bought some cream called "Neuropathy" for around $20 and it does calm the pain down enough to go to sleep for now. A lot of things work for a while and then stop. I tried Hemp cream etc. so far this one works. .

mcgatt | @mcgatt | Dec 21, 2019

In reply to @wilcy "You said you only have minor neuropathy in feet! I probably wouldn’t take anything! I have..." + (show)

Sounds good

mcgatt | @mcgatt | Dec 21, 2019

In reply to @maryv449 "I bought some cream called "Neuropathy" for around $20 and it does calm the pain down..." + (show)

I use Neuropathy oil. Myrhh and frankincense. Works well

mcgatt | @mcgatt | Dec 21, 2019

In reply to @steeldove "@fonda Yes, pain and numbness can coexist. Small fibers are sending one signal, and large fibers..." + (show)

There must be some drug free way to overcome chronic pain . Mind over matter. Or yoga technique. Yoga has been around for a long time. The yogis must be able to give us help in this crucial concern of dealing with life debilitating pain!

wisfloj | @wisfloj | Dec 21, 2019

In reply to @dawn67 "I was just diagnosed with neuropathy. I’m in a lot of pain with numbness, tingling etc...." + (show)

Dawn67 - just curious, and alcohol's impact on neuropathy has been discussed here before. Question is, how much is too much?
Of course someone who drinks 1/5 a day would know that’s too much and definite cause and effect. Some of us enjoy the mental break from our pain and want to drink in the evenings. But then is it just adding to the viscous cycle? Please share what you can about frequency, amount, years of use and it’s impact on neuropathy. Mine has no determined cause but I am determined to figure this out. Most of my life drank little, some years only typical young adult weekend fun, later years with stressful job a little more Frequently and quantity....
Thank you for any insight