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How to decide whether to take Camzyos or have surgery?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 hours ago | Replies (40)Comment receiving replies
Thank you so much for your post!
I wasn't as active as you are but enjoyed walking and traveling.
The lack of energy/fatigue that comes with our diagnosis is most frustrating.
It is good to know that there is a surgical alternative if Camzyos ever fails me counteract my fatigue.
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@sassyrdh329. Thank you for sharing your experience. I have been out of the hospital for a month now and am angry that everything is taking so long. My cardiologist was only interested in the drugs and I had to push for a surgical consult. I strongly feel I'm getting worse and feel this thing has become a nightmare. Delays , mistakes, can't find records, approval after approval, signature after signature..... Someone even scheduled me for knee surgery on My Chart and now I'm getting repeated messages to prepare for it or watch videos.
I feel like getting on a plane and flying to Rochester, and just walk in the door.