Living with Neuropathy - Welcome to the group

@wilcy Hi. I think we have talked before. I have severe peripheral neuropathy, and so far, I feel Kratom works way better than anything for pain, if you find the right strain. I buy mine on line from Happyhippoherbals.com I chose them after lots of research because they have been approved by the American Kratom Society for the purity of their products. There are no contaminants. pesticides. salmonella, etc. I pick the "low strains," that they say is for something like body discomfort, well being. They do not come out and say it is for pain, but my oh my, I am utterly pain free from the right choices. I do not take it everyday, as it is addictive. I take it no more than about 3 days a week, tops. But I like it because it is just relaxing, and does not make me feel high. And all pain leaves for maybe 3 hours or so. I take it twice in one day, usually. I take about 5 grams a serving. I seem to need a lot to feel it. Anyway, thought I would share. The stuff is vile, but I swig it down, and laugh. Really disgusting, but a miracle for pain. Lori Renee

Hello Lorie, have tried everything known to man for my spinal stenosis with neuropathy! I saw on one of these sites about a guy getting good results with it! I am using Bali Kratom! I take atleast 8 grams a day! I can walk a lot farther and actually go to stores! Surgery did nothing! Doctors afraid to prescribe any strong medication! , cya! Medical marijuana makes me want to be couch potato! Good for pain but I don’t like getting high! Yes, you have to take a lot of Kratom for good results! Am 68 and could care less about becoming addicted! Wierd, this is only thing I have found to work! Good for depression, anxiety and a lot more! Neuropathy is hell! I’m just trying to help people like us! Might not work for everyone, does for me! Keep in touch!

Thanks fir welcoming me. I have had cidp for 16 years, my neuropathy is unexplained...have been thru all the tests they found no cause. I have since developes diabetes 2 and of course the pain has increases. I took IVIG treatments for almost 9 years, the dr decided i was at a stand still and took me off for fear of liver problems. I have since gone thru all tje pain drugs and am currently on tramadol twice a day as well as 3600 mg gabapentin daily
as well as dulexotein . i was taking 8 50mg tramadol a day and now the all knowing insurance has cut me down to 2 a day. I have all the numbness, tingling, fire, freezing, ants biting, knives stabing, rubber bands snapping , you name it i have it from my toes to just iver my knees and my fingers to my wrists. It is a slow death. I am seeing a new neurologist on thrusday to see if he can do anything for me. Cbd salve helps for a couple if days then it doesnt. I gave even tried oxycodine that was prescribed to be during a knee procedure dudnt help much. I have a bad knee and a bad hip, but am scared to desth on how the surgery will affect my body. You may think i am an old person, well i am only 62 so age was not a defining contributor.....any one have any ideas???

Try Bali Kratom! Working for me! It’s a supplement

@wilcy Thanks for writing to me! I am really surprised more people do not try Kratom. The stuff is a miracle. It really resonated with me that at 68 years old, you really don't care about the addictive qualities of Kratom. I have actually thought about that, as I am also 68 years old, and it's like, who cares? My only problem is that it may be raising my blood pressure, but I am not absolutely sure of this. It also does make your mood very good, without making you high. The stuff really works! Do you take the powdered form, or capsules? I take the powder, swig it down, and shudder. Neuropathy is a relentless bitch of an illness. My pain doctor has offered a Dorsal Root Ganglion stimulator, that can target exactly what nerves need targeting. But to me, that is scarey stuff. You cannot have an MRI if you need one, once it is implanted. Next week, I will be getting vitamin B12 injections. God knows if they will help the feet. Anyway, I feel blessed to have researched Kratom, and tried it. To me, it is absolutely the only thing that works!!! Keep in touch, Lori

I am sorry you are in so much pain, i wish i had some magic answers but i don't. I do put foot creme on at night and it does cool my feet off and takes away the burning needle feeling. Otherwise I just try to stay active, best wishes to you, I hope you find relief soon.

@maryv449 I get my Kratom at Happyhippherbals. com You try a slow/low strain, one described as to help discomfort. I forgot how they exactly describe it, but it is for when you dont feel well. Usually, too, anything called Maeng Da usually works for pain. Kratom is marvelous. The only thing that rids you of pain, without the high of marijuana. Good luck. Lori Renee

Am taking capsules! Going to switch to powder! Really helps with sleeping good! My daughter is wanting to use it for back etc! Been cking your online source! Am taking quite a lot! Only been doing this a few weeks! Am scheduled to see another back surgeon the 19 th! Most don’t believe in supplements! I take a lot!

Hi and welcome! Interesting about the IVIG. Too much of anything can cause damage but there really does have to be a point of choosing our battles considering we do need to live now in comfort as best we can. I'm 3 years in and continue to search. It's troubling to think that at my age (46 when srarted) of the long term damage but being between a rock and a hard place I've found that my Hydrocodone, Lyrica, Duloxetine and a ton of supplements need addition help to control my pain. It was lidocaine infusions until they stopped working. My Neurologist has plasmapherisis and IVIG as additional treatments in future. As of now I'm choosing CBD and THC tincture as the add on to the my other treatment plan. Exhausting isn't it? Maybe try Kratom...It's being discussed more in this forum. I wish you luck and hope you can find more comfort in this crazy journey. Be well.
Rachel

About 3 years ago after trying just about all "pain killers" on the market, i tried both CBD and THC tinctures. The CBD did nothing for me. The THC is taken each evening and if nothing else, i sleep thru the night. I cannot afford to take the THC Tincture throughout the day so i opt for a good night's sleep instead.