← Return to Anyone have chronic lymphocytic leukemia (CLL)?

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @haroldgoerzen. Not sure how you sneaked in past my radar, but I want to belatedly welcome you to Connect! ☺️
Reading through your reply to @suzjlance I see you intially were diagnosed with MBL. Monoclonal B-Cell Lymphocytosis. That is a condition which can lead to CLL over time.
A little more on MBL from Healthline.com
https://www.healthline.com/health/cancer/monoclonal-b-cell-lymphocytosis
Now that there has been a progression CLL, you’d like to learn a little more about your condition. Hopefully you’ve been able to read through all of the conversations from the first posting in this discussion to see that CLL remains one of the more treatable forms of leukemia. There are links imbedded in the conversations informational articles and websites on CLL. Many people may go years without requiring any treatment.
What has your doctor talked to you about in regards to the staging of your disease? Was there any mention of possible treatments down the road?

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Replies to "Hi @haroldgoerzen. Not sure how you sneaked in past my radar, but I want to belatedly..."

@loribmt NO he hasn't, this is my second oncologist and I've only seen his once but like him much better than the first one. . Everyday I have more questions and write them down for my next appt. I do a lot of research and joined CLL groups to get more information. By the way, before I had CLL and LPL, I had Mgus for 4 years. They tested me twice a year before being diagnoses with CLL.