Hi @winniegirl You’re never alone here in Connect. We may be miles apart, sitting behind our computers instead of at a kitchen table together sipping tea and sorting through life’s trials. But it helps to know someone is nearby to toss out a lifeline for you. ☺️
I know from my own experience, starting a new medication can be filled with uncertainty. With your diagnosis of myelofibrosis (and the CML being in remission) your doctor is recommending that you take the drug Jakafi. This can be a very effective drug for helping to get your MF under control and to help keep it from progressing. This larger dosage of Jakafi that has been prescribed may not be long term once your platelet levels drop to a more normal level. Often medications like that can be adjusted to the lowest effective dosage after a certain level of treatment has been reached.

The first pill is always the hardest to swallow with fear, and trepidation. But usually as the day goes on, you forget you’ve even taken it and realize nothing happened! You’re waiting for the ‘worst’ but not having any idea what that might entail. Usually, it’s nothing because our imaginations can be stronger than logic.
You’ve got this, gurl!! What’s the old saying from childhood?? Through the teeth, over the gums, watch out stomach, here it comes… 😂
This medication can make a big improvement for a healthy future ahead.