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How's your quality of life living with MDS?

Blood Cancers & Disorders | Last Active: May 30 5:01pm | Replies (20)

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @donirankin. Oh goodness, your husband is certainly undergoning a number of health issues with having prostrate cancer, myelofibros (MF) and MDS. That’s a lot going on…for both of you! I’m sure those nurses at the infusion center feel like family.
The fatigue when hemoglobin dips that low is so debilitating. I’m glad he feels better with the transfusions. I remember how that felt…an infusion of energy for a few days!
Is your husband having chemo for his prostate cancer or either of the blood cancers?

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Replies to "Hi @donirankin. Oh goodness, your husband is certainly undergoning a number of health issues with having..."

Hi@loribmt. Yes, his going through a lot with (MF) and MDS plus, prostate cancer. His not doing chemo on his prostate anymore because his blood counts are way too low. I can see how weak he can be before his blood transfusions though. Right now, his receiving two units of blood every week. My concern is the future build up of iron that might affect his heart. His also getting some kind of chemo shots right now. I can't remember the name of the medication shot. You're right the nurses at the infusion center are all nice to us and that makes a big difference.