@winniegirl
HELLO WINNIE AND OTHER FRIENDS
I READ SLMOST EVERY POST TO LEARN AND TO SHARE FROM PERSONAL EXPERIENCES!
I was on JAKAFI FOR LITTLE OVER A YEAR , memory not sharp any longer 🥵
MY ONCOLOGIST HEMOTOLOGIST PRESCRIBED JAKAFI!
IT QUICKLY REDUCED ALL MY BLOOD NUMBERS BELOW LOWEST , I COULD TELL BECAUSE THE FATIGUE WAS SEVERE , I REDUCED DOSE BY HALF ! On my own! Went to HEM/ONC WHOME I JUST TOTALLY
Trusted and LOVED 🥰
I ASKED TO BE SENT TO MPN SPECIALIST , I had seen him once for consultations!
THE MDS MPN DOC
TOOK ME OFF JAKAFI BECAUSE AMM MY BLOOD NUMBERS WERE EXTREMELY LOW !
My opinion is that JAKAFI IS A GOOD DRUG ! However BLOOD LEVELS MUST BE CLOSELY MONITORED!
I AM NOW BEING TREATED FOR MF MYELOFIBROSIS BY THE MPN/ SPECIOLIST !
I would SUGGEST THAT YOU GO GET TREASON BY THE MPN SPECIALIST!
HE OR SHE SPECIALIZE IN BLOOD DISORDERS OR BLOOD CANCERS !
Make A FIRM DECISION AND TELL THE MPN DOC YOU WOULD LIKE HIM TO TREAT YOU GOING FORWARD!
The HEM/ONC SHOULD UNDERSTAND YOUR DECISION!
Good 👍 LUCK 🍀 HANYA