PN - speed of upwards progress?

My neuropathy has moved slightly up my legs over the past 10 years to just above my ankles, but only when I'm having a really bad day. I think everyone's experiences are different, from mild to severe.

@v8auto
I've had neuropathy for 45 years but I don't know what type it is. My neuropathy progressed from the bottoms of my feet up to just past my waist, causing multiple complications. My legs have become weaker, but the pain went away and replaced by numbness. It's probably like @mrmacabre says "I think everyone's experiences are different, from mild to severe."
Take care,
Jake

I don’t have an answer to your question but I will have a comment. I have neuropathy in my feet and it’s starting to go into my lower calves. I think my feet and heels are becoming more and more numb and it’s a little scary.

@kllevinson
I had neuropathy starting in 2025 and it was mild and confined to feet. Now, after having a shin shave biopsy in which I probably had some peripheral nerve entrapment, the neuropathy is now in my lower calves but not every day. I find environmental extremes and weather changes affect me--first, the long, cold winter which probably interfered with my shin healing, and now we went from a cold, damp spring into blasting heat. The extremes are not very good for neuropathy people. I try to do exercises and it helps--that, too, cannot be too extreme or nerves will flare up, eat healthy, take supplements ( I also have celiac disease which caused the neuropathy.) Finally, I keep in mind that like the weather, my flare up is most likely temporary. Each day brings something new. It is important to be body aware-maybe even keep a journal of symptoms.

@kllevinson I've had it for 7 years. Last year I noticed it creeping higher.
Its in my thighs now, and affects my bladder.
Awful disease!!

@arcuri24
Yes, I didn't understand that low atmospheric pressure would set it off.
Also, if I eat something with sugar it translates to worsening symptoms... I will have a reaction within 2 hours or so after eating.

@suzirist

I, too, find sugar to be inflammatory sometimes. With the hot weather, I decided to have a small dish of ice cream last night and I felt more tingling than before having it. Natural sugar from fruit does not seem to have the same kind of impact. It is the added sugars. I am not diabetic.

@suzirtist
It took decades for my neuropathy to climb to just past my waist.
But eventually it worsened and the pain went away replaced by numbness and slight tingling that isn't bothersome but the complications stayed, bladder, bowel issues, leg weakness & ED have remained.
I was diagnosed with neuropathy in 1981.
Best of luck to you,
Jake