← Return to Weekend caring for my mother: Parkinson’s and Sundowners or UTI?

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Your mother's symptoms are very similar to my husband's. From all that I have read, Sundowners or dementia goes along with Parkinson's Disease. He gets very confused at times and says things that do not make any sense. He has trouble explaining to me and his caregivers what he needs or wants. My husband is probably in stage 4 or 5 of Parkinson's and is now under Hospice care. He has been in and out of the hospital and rehab for the past two years. We are having 24/7 care for him at home because this is where he wants to be. He does have trouble sleeping, the same as your mother. He can no longer stand or walk on his own and we recently received a hoist to move him around. He stays in his lift chair all of the time. He has a hospital bed but refuses to sleep in it. Just recently, he has been choked on fluids. I recommend full Hospice care if you do not already have this. This was a very hard decision for me to make but the care my husband is receiving is so much better. Caregiving for a loved one is very difficult and can wear you down quickly-not only physically but emotionally. My husband was an Air Force pilot then a top salesman for a chemical company. He was a very intelligent man and to see him the way he is now breaks my heart. I'm sure you and your father are having some of these same feelings. God bless you in this most difficult journey!

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Replies to "Your mother's symptoms are very similar to my husband's. From all that I have read, Sundowners..."

@vette98 how was the determination made for hospice? Was your husband seen regularly by a doctor?