Living with Neuropathy - Welcome to the group

Thank you for your best wishes. I'm returning same to you. We neither have a magic cure I guess.

Medical marijuana

Hi @hertz, Welcome to Connect. The best thing you can do to help yourself is learn as much as you can about your health conditions and what others have found helpful. You will get a lot of suggestions from others who share your symptoms.

You may want to check out the following discussion to meet others discussing polyneuropathy.
> Groups > Neuropathy > Anyone been diagnosed with CIDP? It's very rare
-- https://connect.mayoclinic.org/discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare/

What have your doctors or neurologists given you to treat the pain?

@resawaller have you discussed your feelings about the surgery with your surgeon? Maybe you can discuss the positives and negatives of possible outcomes with the surgeon to hopefully make you more comfortable having the surgery. Also, have you thought about getting a second opinion?

@resawaller Before letting them cut your head open, please get a 2nd opinion. I had never heard of Chiari malformation unti a few years ago when I connected with my niece in New York. She has it and her life has been a difficult to say the least to live. She is not yet 40 years old and has had many surgeries and has shown me scars and tried to educate the family about Chiari malformation. In fact I believe this to be Chiari malformation education month. She functions a best she can raising a family and now raising her 2 year old grand daughter. I pray for her daily. She had just posted about how few people actually have this disease if a disease is what it is called. Very few and as she says she happens to be one the few. I do not know your medical history or your doctor's advise, but please be sure you are being treated by a surgeon who specializes in Chiari malformation. My prayers are with you.

Good afternoon @hertz, I concur with @wilcy. If you want to peruse medical cannabis, I am ready to help you. I have never taken opioids for my small fiber neuropathy (SFN) which is very Poly in its attack areas, (my peripheral body parts.).

My journey also includes about 4 years of research and experimentation. The medical cannabis products have continued to be refined and regulated in adult access states. Please share with us your pain sites and the treatments that you have tried. Then we can make an attempt to understand your needs.

We are not medical practitioners and so can only share what we have experienced. We are happy to do just that. May you be free of pain today. Chris

I realized that the links I sent earlier did not work properly. They should have been specific to Lidocaine infusions. Let's try this again...
https://www.rxlist.com/consumer_lidocaine_lidopen/drugs-condition.htm

I have used both gabapentin and Lyrica.. No side effects to speak of but also no relief. I am getting a referral back to the pain MD.. I had to stop my therapy as it was too painful.

My son brought me cannabis products, at a price! The hemp extract taken internally did nothing, neither did the salve. I used it faithfully. Please don't try and talk me into trying this again, I won't.

Oil didn’t work! Vaping did!