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How's your quality of life living with MDS?

Blood Cancers & Disorders | Last Active: May 30 5:01pm | Replies (20)
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Profile picture for nini09 @nini09

Truthfully it isn’t great.

I suspect it is the medicine (hydrea500 8 times per week) making me exhausted with joint pain and suddenly feeling old.

But my platelets were at 1.5million and now hovering around 600. The drug is working

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Replies to "Truthfully it isn’t great. I suspect it is the medicine (hydrea500 8 times per week) making..."
Colleen Young, Connect Director | @colleenyoung | May 30 9:32am

@nini09, I'm glad that the medication is working. Side effects of treatment that helps the disease, but not overall quality of life are challenging to deal with. You might find this related discussion helpful:

- Contolling Hydroxyurea fatigue by time of day you take the medication https://connect.mayoclinic.org/discussion/contolling-hydroxyurea-fatigue-by-time-of-day-you-take-the-medication/

How long have you been living with MDS?

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