My cancer is back...

@mayers my first time i was on carbo/taxol...i was told locally that they could offer me comfort care...not an option imo because i was dealing with my best friend and his pancreatic cancer also and his only caregiver..., i went 4 hours away to a teaching hospital with a WONDERFUL cancer program where he was getting chemo...i was stage 3c, ovarian throughout my abdomen, went through 7 surgeries that year including 2 for skin cancers one of which i had to have nose reconstruction for ...yea the nausea and hair loss sucked, i went through i think everything possible it seemed but i honestly think i was more scared this time.. prob because i don't remember so much last time since i was dealing with his...
i think you should consider the chemo, BUT that is YOUR choice, no one can make that for you, however i was beyond was the local docs thought was treatable and they were wrong lol...of which i've told them so when i see them...(yea i tend to be opinionated but if i don't advocate for myself who will) yes the side effects suck but i rocked those wigs, i even had a blue one, my son who was in florida had one made from his hair (Can't find that pic"), i had a bright red one, one that was kinda the color of my hair before i started getting gray that looked really natural and a couple of wig caps that looked like i was just wearing a ball cap over my hair.. they were great...
attached are a FEW of my various looks while going though the hair loss etc ( I had about 20 wigs, amazing what i found NEW at yard sales lol)...i kept my favorite wigs in case i ever needed them but donated the rest to the cancer center for others going through it...it was like everything else...i dealt with it all with humor (including the go away shirt lol i had matching leggings with smiley faces on them) and even dressed as an elf when i was in for my last surgery in Dec 2024...i have that pic somewhere if you'd like to see it...gotta say i really didn't look good as a blond unless it was my ball cap one so i didn't share those LOL

@mommacandy Thanks for your reply. I'm really down today. I need a pet scan and have to go without sugar for two days and I'm a sweetaholic and also claustrophobic so I'd just like to forget the whole thing and just die asap. I cannot accept the fact I have carsinosarcoma of the uterus. It was 96 percent filled with cancer, but they removed everything ovaries, uterus, falopian tubes and cervix as well as the uterus and now they want a pet scan. As I said before, I'll do radiation but not chemo. How I hate scans with my claustophobia. I still think you are the bravest woman I know. Margie

@mayers my first time i was on carbo/taxol...i was told locally that they could offer me comfort care...not an option imo because i was dealing with my best friend and his pancreatic cancer also and his only caregiver..., i went 4 hours away to a teaching hospital with a WONDERFUL cancer program where he was getting chemo...i was stage 3c, ovarian throughout my abdomen, went through 7 surgeries that year including 2 for skin cancers one of which i had to have nose reconstruction for ...yea the nausea and hair loss sucked, i went through i think everything possible it seemed but i honestly think i was more scared this time.. prob because i don't remember so much last time since i was dealing with his...
i think you should consider the chemo, BUT that is YOUR choice, no one can make that for you, however i was beyond was the local docs thought was treatable and they were wrong lol...of which i've told them so when i see them...(yea i tend to be opinionated but if i don't advocate for myself who will) yes the side effects suck but i rocked those wigs, i even had a blue one, my son who was in florida had one made from his hair (Can't find that pic"), i had a bright red one, one that was kinda the color of my hair before i started getting gray that looked really natural and a couple of wig caps that looked like i was just wearing a ball cap over my hair.. they were great...
attached are a FEW of my various looks while going though the hair loss etc ( I had about 20 wigs, amazing what i found NEW at yard sales lol)...i kept my favorite wigs in case i ever needed them but donated the rest to the cancer center for others going through it...it was like everything else...i dealt with it all with humor (including the go away shirt lol i had matching leggings with smiley faces on them) and even dressed as an elf when i was in for my last surgery in Dec 2024...i have that pic somewhere if you'd like to see it...gotta say i really didn't look good as a blond unless it was my ball cap one so i didn't share those LOL

@mommacandy Thanks for your reply. I'm really down today. I need a pet scan and have to go without sugar for two days and I'm a sweetaholic and also claustrophobic so I'd just like to forget the whole thing and just die asap. I cannot accept the fact I have carsinosarcoma of the uterus. It was 96 percent filled with cancer, but they removed everything ovaries, uterus, falopian tubes and cervix as well as the uterus and now they want a pet scan. As I said before, I'll do radiation but not chemo. How I hate scans with my claustophobia. I still think you are the bravest woman I know. Margie

@mommacandy Thanks for your reply. I'm really down today. I need a pet scan and have to go without sugar for two days and I'm a sweetaholic and also claustrophobic so I'd just like to forget the whole thing and just die asap. I cannot accept the fact I have carsinosarcoma of the uterus. It was 96 percent filled with cancer, but they removed everything ovaries, uterus, falopian tubes and cervix as well as the uterus and now they want a pet scan. As I said before, I'll do radiation but not chemo. How I hate scans with my claustophobia. I still think you are the bravest woman I know. Margie

@mommacandy Hello. I’ve been thinking about you. I’m wondering how you are doing? Are you still traveling for chemotherapy? Any news to share on doings in your family, chickens, dogs, your garden?

@naturegirl5 i'd been out of town and just getting around to checking my email... over 500+!!!! just about wore out the delete button LOL
so here's the latest....one of the chicks got injured last week moving the tractor, her leg got caught under it, so she spent a few days indoors in the cat carrier to keep her from moving but she's back in the tractor hobbling around now...
had my mid chemo CT scan...yea that was interesting...let me share a bit about it...
What a week this has been so far. Started it off Monday with my daughter taking me to UVA for my ct scan to see how the chemo is working and labwork... because having gone through this before , I was pretty sure I was at the level of needing a blood transfusion. So we get to the cancer center. I go upstairs for the lab work and they take off to run around , knowing i'm going to be a while.
I had this wonderful little Filipino nurse to access my port who actually listened when I told her to use a smaller needle instead of the one that they usually use and to just leave it accessed , because I had to go for the scan. Then downstairs to the pharmacy to pick up refills on my anti nausea drugs with a phone call to tell my daughter I was pretty much finished. And of course , she had just gotten into the parking garage , so she had to turn around and come back out to pick me up.
From there, it was across town to the fontaine center where after I got checked in, they bring me that absolutely foul , tasting contrast stuff with all the artificial sweeteners in it.. i told them I could not drink that stuff and they needed to get me the stuff that would mix with plain water. Of course, the one who brought it to me is like I can't do that, because we don't have any there's a shortage to which I politely responded to her that I told them that it was the only kind I could take during the consultation , so this was something they knew. So she said, okay, let me go see what I can do. And about ten minutes later , she comes back out with the right stuff.. so I drink it, sit there, wait the half hour or whatever it is you have to wait and then they take me back for the scan. Meanwhile, I'm still waiting to hear from the doctor's office on whether or not I get a transfusion. I had already looked at my lab work and thought that they probably would , but I was right on that border line with my numbers. After waiting half hour or so after the CT scan was finished. I finally told them to just go ahead and deaccess the port I was going home. Right after I got on the interstate , I got a message from them saying they had not heard back from the doctor so it was probably okay to go home, that apparently my levels were too high for a transfusion by just a little bit. So we continued on home
Yesterday morning (Tuesday) we went to the clothes closet because it was our day to open and I get a message asking if I was having all these different symptoms (ie dizziness, faintness, fatigue etc) to which I politely replied yes, to all of the above, that was the reason I wanted you to do lab work when I was there, because I thought I needed blood. Well , I get a message back from them saying that I need a transfusion 😆.. and i'm just sitting there thinking , well duh , I told you that yesterday , but you didn't listen to me.... so now I'm scheduled to go back on Friday to get blood that could have been taken care of Monday when I was up there, had they only listened to me. Thank goodness one of my friends has agreed to drive me. I'm really tired of feeling like i'm going to drop walking through the house. BUT my CT scan showed the place on my liver is gone and the one in my pelvic cradle has decreased by half...so thats all good...
So this morning, I got up and after losing another couple of handfuls of hair, I decided I'm done, I'm going to get it cut... at least with short hair as it falls out and thins, I won't be clogging the drains quite so much.. i'm not supposed to lose it completely , but it is definitely thinning.. so that's it so far for the exciting news so far this week 😀