← Return to CSID Diagnosis and how are you dealing with it?

Discussion
choosejoy avatar

CSID Diagnosis and how are you dealing with it?

Digestive Health | Last Active: May 16 11:24am | Replies (6)
Comment receiving replies
Profile picture for csherh @csherh

Since childhood I have had intestinal issues, diagnosed as IBS. I suffered for years until recently discovered malabsorption of protein and zinc. Many foods are intolerable, ex: soy, milk, etc
Newly diagnosed with CSID. I'm at a loss. Please, chime in. Would appreciate all input as to how to live with this. Thanks

Jump to this post

Replies to "Since childhood I have had intestinal issues, diagnosed as IBS. I suffered for years until recently..."
Janell, Volunteer Mentor | @jlharsh | May 16 11:24am

Hi @csherh, and welcome to Mayo Clinic Connect! You have landed in a place that will be helpful navigating all things Congenital Sucrase-Isomaltase Deficiency (CSID). A new diagnosis is overwhelming and I imagine you are trying to figure out what to do first.

@sueinmn provides a link with straightforward foods to help just above your post. I also want to share an NIH link I hope helps you understand CSID better, not overwhelm you. My thoughts are this comprehensive overview will prompt questions, both with other members here as well as your doc(s).

-NIH Sucrase-Isomaltase Deficiency Disease Informaiton
https://rarediseases.info.nih.gov/diseases/6183/sucrase-isomaltase-deficiency
What is your biggest stressor currently? Now that you have been diagnosed with CSID, what is next?

VIEW AND REPLY