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Lobular Breast Cancer: Let's share and support each other
Since lobular breast cancer is only 10-15% of all breast cancer diagnoses and now understood to be a unique subset of breast cancer as a whole with different characteristics than ductal breast cancer necessitating different treatments and inherently different risks, I would like to see a separate category under the breast cancer forum so that the most appropriate info is being disseminated for this specific subset of BC. Just a thought.
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I don't know what med your taking but studies show that AIs and cdk4/6 inhibitors can have dose reductions without affecting efficacy. AIs like letrozole can be changed to every other day. I take both letrozole and Kisqali. No problems with letrozole, but the cdk4/6 inhibitor Kisqali gave me neutropenia severe enough to reduce dose from 600mg to 400mg and finally 200mg where I still have reduced neutrophils but manageable. I wouldn't dose adjust any med without discussing with your onc but it is doable and certainly better than doing without.
I have found medication management to be more difficult than active treatment was. I was on Anastrozole and tolerate fine for about a month - just little teary. After about a month I started going sideways - paranoia, the "ugly" cry for no reason, nervousness etc. I am now on Letrozole and tolerating. I was also put on Verenzio (sp) and it came back up within 30 seconds. Next Kisqali which caused extreme headaches with vomiting. I am fortunate that I have a wonderful care team that will pivot to try to make adjustments. Wishing you all the easiest journey possible!!