Connect
Research on TMJ: What treatments work for you?
This just arrived in my inbox, and I thought some of you might be interested:
TMJ Patient RoundTable Project: Status Update
https://tmj.org/living-with-tmj/tmj-implants/tmj-roundtable-project/
The TMJ Patient RoundTable is also the first patient-led project to be conducted under the auspices of the Medical Device Epidemiology Network (MDEpiNet), a public-private partnership developed to bring real--world data-patient experiences together with a broad array of experts to conduct studies aimed at improving outcomes for implant patients worldwide. The unique aspect of the RoundTable initiative is its patient-centeredness and in that regard, we expect to involve you, the TMJ patients, in aspects of the project as it enfolds.
The TMJ Patient RoundTable was initiated by a need to find out why some TMJ patients have successful outcomes from implant surgery, while others do not. It has evolved into a comprehensive study of all aspects of temporomandibular disorders and how these various aspects interact to affect patient outcomes. The goal is to establish a scientifically valid road map that can reliably predict treatment outcomes for individual patients. The long-term goal seeks to incorporate different study topics into the project as it evolves over time.
Like
Helpful
HugInterested in more discussions like this? Go to the Chronic Pain Support Group.
Connect
I don’t know the cause of my tmj but I cannot get any type of medical professional to take it seriously. They all say, “everyone has that and you just have to deal with it.” As I get older it has gotten so much worse where I have severe flare-ups pretty much all the time. My tmj was definitely worsened by a surgery I had some years ago that caused extreme neck tightness on the left side. I get massage and cupping done once a month and that helps a little. I avoid hard or tough foods. I have a little tool that heats up and I work the muscles in my jaw because they get full of knots. I think at this point I need to look into steroid shots and Botox because my quality of life is definitely declining due to the pain and discomfort. I constantly feel the need to stretch and clench my jaw. I can never just relax because my jaw hurts 24/7!