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Profile picture for lkirnbauer @lkirnbauer

Sounds like you’re in a little bit of a messy medical situation. It sounds like you may have a Thyroid condition as swelling is not normal. You may have nodules on your thyroid or it could just be that you have Hashimoto’s with Hypothyroidism and need hormone medication like Synthroid or Levothyroxine to control the Hypothyroidism. If you have nodules on your Thyroid, you may need surgery to remove them, but they will most likely be watched initially after being diagnosed. They could also be malignant and need to come out. My daughter had a 6 1/2 hour surgery to remove her thyroid and several nodules due to thyroid cancer. Non-smoker as well and she is doing well 3 years post surgery. Don’t play around with your health here, it could be dangerous. I would also find a new Endocrinologist that specializes in Thyroid conditions. Yours is not helping you at all!

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@lkirnbauer thanks for your care and concern. I did have biopsies done and so far everything looks benign. I had a couple removed due to their very large size. But the thing about benign tumors is that they have nothing to do but grow, especially if they have cystic components where they can accumulate fluid. My guess is that in the last few months something has changed because of the pain, trouble swallowing, etc. I am being seen by endo at Mayo so I think that’s about as good as I’m going to get, other than the difficulty in obtaining follow-up visits.
I’m glad to hear your daughter is doing well and that everything went great with her surgery. Did she struggle with her meds at all? I had a family member struggle with meds after their thyroid was removed and I am not 100% sure why that was, but it makes me nervous to get mine taken out completely.