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wes152 avatar

Caregiver for my wife when I need treatment for my AML?

Caregivers | Last Active: May 24 10:28am | Replies (13)

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Profile picture for Lori, Volunteer Mentor @loribmt

Oh gosh, Wes this is a tough situation for you and your wife. I can't even imagine how stressful this is for you, especially currently going through treatments for AML. That's not an easy road.
For your BMT at Rochester, you'll be required to have your own dedicated caregiver for 3 months and have lodging off campus, but nearby, in a hotel, airBNB, apartment, Gift of Hope transplant house, etc. I stayed in a hotel suite (2 bedrooms 2 baths, full kitchen) with my husband for 4 months about 2 blocks from the Mayo Campus.
But I really am at a loss as to how to find a caregiver for your wife while you're unable to assist her. To be honest, even when you return home in 3-4 months you're still not going to be in a position to return to normal caregiving for her for another several months.
Have you contacted The Wisconsin department of aging and disabilities? https://www.dhs.wisconsin.gov/adrc/index.htm
Do you have a dedicated caregiver for yourself during the BMT? What level of care does your wife require? If you rented an apartment short term is there any family member or friend who you could bring in as a caregiver for both of you?

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Replies to "Oh gosh, Wes this is a tough situation for you and your wife. I can't even..."

@loribmt
Thanks. All the same questions I'm trying to answer!