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← Return to HRT for daughter who is nonverbal autistic, epileptic?
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HRT for daughter who is nonverbal autistic, epileptic?
Menopause | Last Active: May 14 8:45pm | Replies (11)Comment receiving replies
Daughter, 50, nonverbal profound autism, epileptic, lamoctil xr, for that, Seroquel 150 bid for several years, buspar 40 mg bid, been on progesterone for years but just started Estrace 0.5 mg 6 weeks ago
NEVER have I seen my daughter eat so voraciously, I have to take plate away, make sure she chews, then give it back with only small amount on plate, cut up tiny pieces, make sure she sips water, tho she's dropping weight,
Her behavior is very " edgy" stressed, tears up books etc, tosses things, removes clothing and scratches herself
So VERY BIZARRE, I'm used to autistic behavior but should I stop the estrogen? Wean her off? Increase dose? So sad just watching her, how she'll get thru menopause ??
Thanks
Replies to "Daughter, 50, nonverbal profound autism, epileptic, lamoctil xr, for that, Seroquel 150 bid for several years,..."
Hi @minajo
I'm sorry to hear about your daughter's behavioral changes after the estrogen introduction.
I agree with @louissc — please don't stop the estrogen or any other medication before speaking with the prescribing doctor first.
Who prescribed the estrogen — her gynecologist or her neurologist? If it was her gynecologist, has he or she consulted with her neurologist beforehand? In my own experience, every time my gynecologist wants to prescribe me a new medication, he checks with my neurologist first. That kind of coordination between specialists really matters, especially when a neurological condition is part of the picture.
Please keep us posted!
Chris
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Such unexpected behaviours do happen. I believe her neurologist would have made a strong, or VERY strong emphasis, to tell her to let her know if any out of the blue behaviour(s) is/are to happen. And do keep a note book to note the time and what EXACTLY she’s doing them, but don’t associate any of them together. Let the neurologist do the linking if anything. And also take note on 1-10, how will you rank any of the behaviour? Don’t stop any drug without first consulting. It’ll be scary at first but she’ll hopefully get better once the medication works better. It can take 2-3 months to work for neurological ones. Just make a consultation date with the specialist as fast as you can. Stay calm in the meantime.
Cheers,
Louis